Thursday, October 28, 2021

Post-Transplant Update: 28 October 2021

 It has been a tough couple of weeks since my last update, though there is one bright spot.


As I stated in the entry about my recent colonoscopy, it took more time than anticipated to feel better. That was fun...

Once I felt better from that, my energy was still depleted, and I have struggled to get my workouts done. That depletion remains with me today. And I am scheduled to get a workout in today...but I may not be able to. My mind is saying 'yes!', but my body is going, "Ummm... I think not!" So, we'll see. I just finished lunch, so that may give me the energy I need to get it done.

On top of that, I've just had three unexpectedly long and draining days in a row. First on Monday I did my workout in the afternoon, followed by needing to go grocery shopping late, hauling the food upstairs, putting most of it away...and finally collapsing into bed at about 1130p completely exhausted.

Then on Tuesday, I had my normal Chiropractic/Acupuncture appointment in the late morning, a quick lunch, then my latest Belatacept infusion. After that, I noticed in a reflection that my car's DRL's (Daytime Running Lights) were both out; so I checked the headlights, and both of those were out, as well. So, I took an unexpected trip to our long-time mechanic to get them all replaced [because there is so much other stuff in the way that you cannot do it yourself]. This took an additional two hours, and I went home exhausted. 

And yesterday was my local garbage pickup day, which, as exhausted as I was mentally and physically, was not fun to gather and take out. After that was done I collapsed on the couch and slept on and off over the next few hours. Then while on an errand that had to be run, I remembered that I had my yearly Dermatology Exam that was happening about fifteen minutes from that moment! So I rushed to the hospital where my Dermatologists office is located, had to walk about two hundred yards across a very crowded parking lot, had my appointment, then hoofed it back all of that distance to my car. And by this time it was after 300p, and I still hadn't eaten any lunch.

Once home, I ate, then collapsed again on the couch; my energy completely depleted from three long, hard days [for me, at least]. And yesterday was SUPPOSED to have been a day for my body to recuperate! Which brings me to today, and not knowing if I'll have the energy to workout.

On one hand I am grateful that I could get so many things done. On the other hand, I am incredibly exhausted! And with my current daily energy level, I don't know if I can mentally push through the exhaustion in order to get my exercise.


On the good news side, my Dermatology Exam showed nothing irregular or abnormal! My skin remains clean, normal and healthy.  My next exam will be in October of 2022.

I have discovered that my Torsemide (diuretic) is not able to keep the kidney processing fluids as effectively as it should, leading my weight to go up ,stay up, drop, repeat; with no consistency of my weight from day to day. So I have been taking an extra 10mgs of the Torsemide every morning, and since then, I have had four consecutive days of stability (.2-.3 swings) in my weight. 

My headaches have been worse, and I've had two nasty TMD headaches over the past nine days, or so. Keeping these under marginal control has been difficult, to put it mildly.

So, that is my last couple of weeks. 

It is easy to see that my kidney is struggling, and it will only get worse from here on out.


Next month--November--I have no scheduled appointments other than my twice weekly Chiropractic/Acupuncture. Though the Dental clearance remains--which I will work on next week--it will be nice to have a month without any other appointments!

Next week are my November labs; which I will post as soon as I can.


Until then, Happy Halloween!


Good Health to All!

ScottW


Monday, October 18, 2021

Post-Transplant Rejection Update: Colonoscopy Result

 Last Tuesday I started the new prep routine in advance of my latest colonoscopy--my first since 2012. 

The new prep is sooooooooo much more pleasant than the old. I did not have to drink that horrid, sugary, awful tasting "7-Up-like" liquid that pretty much everyone gags over. Instead, the new prep simply involved a half gallon of Gatorade,  238 mgs of Miralax powder, four Dulcolax tablets, and two Gas-X tabs.


In all, I lost over two full kilograms of water!


Anyhow, the test went as scheduled, and took about thirty minutes in total, during which I was sedated. 

The result is that my large bowel (large colon, or large intestine) is completely clean, and free of polyps! The bowel is so healthy that I do not need another colonoscopy for ten years!

Here is the sheet I was given by the physician:





*Even though the color (as seen on the scan above) on this is not accurate, the bowel is pink and healthy, as is seen in my original copy.


The worst part of the test was my feeling lousy for several days afterwards.          I don't recall feeling that bad on my last one, but I may have been. 

Right after I post this, I am finally going to get a workout in after a whole week. I'm just grateful that I am feeling better!


Good Health to All!

SW


Saturday, October 9, 2021

Post-Transplant Rejection Update: 09 October 2021

 It has been a down week for my kidney, and I am struggling with my energy all of a sudden.


Here are my latest labs:


06 Oct 21 Labs:

*Creat:   3.26

*HCT:   34.2 (-0.7) Low

*Hemo:   10.8 (-0.4) IR

*RBC:   3.77 (-0.15) Extremely Low

*WBC:   7.2 (+0.4) IR

*BUN:   45 (+1) Extremely High

*CA:   9.6 (NC) IR

*GFR:   20 (+2) Extremely Low

*Gluc:   108

*K+:   3.9 (NC) IR

*NA+:   139 (NC) IR

*Phos:   3.7 (-0.5) IR

*PTH (Parathyroid Hormone):   105 (High)

               NC= No Change    IR= In Range


Aside from dips in my Red Count and Hematocrit, these labs are fairly stable. 

However, despite the stability, I had a definite downturn in my energy this week. My body has struggled recovering from my workouts, I am feeling physically and mentally drained so much that I am having to push myself to get anything done from day to day. I am hoping this is nothing more than a brief lull, and that I will be able to rebound once more.

I have my Colonoscopy this coming Wednesday. Because I am a transplant patient, I must have a Covid Test, which I will do tomorrow.  I start the oh so lovely test prep on Monday evening, and cannot eat anything of substance all day Tuesday. Clear liquid diets are just the best!  :o(    I will post the results of the test later next week.


I think I'll stop there for today. 

I just finished my exercise, and I am tired!


Good Health to All!

ScottW


Update: 12 Oct 21:  My Covid test came back negative, so there won't be any issues with tomorrow's Colonoscopy.  sw


Saturday, October 2, 2021

Post-Transplant Rejection Update: 02 October 2021

 I have meant to get an entry started every day for the past two weeks, but for one reason or another, have been completely unable to do so.


As a result, this entry will be brief as I have labs this next Tuesday. So let's get going...

Headaches have been good and terrible. I had a doozy of a TMD headache that lasted nearly three days. That was fun.


In general, I have noticed a definite downward trend in how I am feeling from day to day. It is nothing terrible, but I am feeling "off" most days of the week, and though I have my usual energy, I am getting sleepy rapidly once again.

My morning med intake is making me nauseated every single day now. This is definitely new as prior to this, I went from my meds not bothering me at all, to every once in a while, to several times each week, to now every day. My usage of oral Zofran has definitely increased as a result.

I am still getting my workouts in three days each week, and the results are finally starting to show.

My weight has been fluctuating upward. Part of this is due to my exercise. The biggest increases are due to water retention. As of this morning, I weighed in at 117.8 Kgs. Even extra Torsemide is not helping much.

With continued workouts my sleep remains solid. I don't even want to think of how exhausted I would be if my sleep was poor...

Going on four months post Vaccine #2, I am STILL  having daily side effects! Usually it is the fuzzy vision that lasts an hour or so; but I am also getting dizzy, and getting suddenly hot. I can get one or all three of these side effects on any given day.


My twice-daily blood pressures have been all over the place, ranging from the low 130's (Systolic) and 60's (Diastolic) to the high 160's and mid-80's. Even though I try to avoid it, frustration at my weight yo-yoing and the BP fluctuating wildly has definitely started to happen daily.

As you know, I am hoping to avoid dialysis as long as possible. With how my weight, BP and general feeling are going, dialysis will happen sooner rather than later. But, I'll still keep hoping...


I finally was able to get my Colonoscopy scheduled. The Gastroenterology unit at IMC was kind enough to place me ahead of other patients due to needing it for transplant. I am scheduled for 19 October.


That is all for today. Like I said...brief.

With my labs next week I WILL get another entry done!


Good Health to All!

ScottW