Moving my daughter went well, and for happening in December, our roads both to and from there were dry and perfect.
The biggest issue I've had since we got back has been an unrelenting exhaustion. I am sleeping several hours during the day, but still getting a full night of sleep. Only yesterday did I actually go a full day without a long nap.
And because of the exhaustion, I have not yet gotten any exercise in the week since we returned; which is not good at all.
I did my December labs last week, and here are the results...
09 Dec 21 Labs:
*Creat: 3.30 (-0.16)
*HCT: 35.3 (+0.6) Just Low
*Hemo: 11.1 (+0.2) IR
*RBC: 3.83 (+0.01) Extremely Low
*WBC: 7.7 (NC) IR
*BUN: 46 (-3) Extremely High
*CA: 9.3 (-0.3) IR
*GFR: 20 (+2) Extremely Low
*Gluc: 107
*K+: 4.1 (+0.2) IR
*NA+: 140 (NC) IR
*Phos: 4.0 (-0.5) IR
NC= No Change IR= In Range
These latest labs show stability, which is great!
Unfortunately, as I have been telling you in previous posts, the labs are not reflective of how I am doing overall.
In addition to the extended exhaustion and the increasing daytime naps, my weight has risen due to an increase of water retention. Yesterday morning I weighed in at 118.4 Kgs. This is after I had weighed 117.6 Kgs the day before. The 10mg of extra Torsemide is no longer holding my weight at a consistent level.
I have also noticed a rise in the non-TMD headaches. This may be coincidental to the exhaustion of getting my daughter moved--and I'm hoping that is what has happened--but I am not resting on that hypothesis. I have had two nasty non-TMD headaches over the past week and a half, which required my strongest med to tamp down. My T3 usage has increased slightly because of these headaches, as well. I'll definitely continue watching these.
I had my latest visit with my Nephrologist yesterday, and it went well.
He agreed that my labs are stable, but is concerned about my blood pressures, water retention and exhaustion. To help with the BP, I will be starting on Losartan (Cozar) late in December. If my January labs show any deviation in my potassium or phosphorous, then he will re-evaluate that med at that time.
He is also ordering [for Jan labs] a Thyroid check, cholesterol and my iron levels. I will be sure to let you know those results.
As far as the water retention, he wants me to continue using 60 mg of Torsemide every morning, and add extra Torsemide depending on my weight gain or loss.
Overall, he is pleased with how I am doing. So, no imminent dialysis.
I have now gone almost a month without any apparent Wuhan Vaccine side effects...finally! I am still debating whether or not to get a booster when it is time because of the severity and length of time of said side effects. Plus, the Kidney Clinic has not announced anything regarding the booster shots. More on this at a later date.
That wraps up this entry.
With Christmas next week, I likely will not get another entry until the following week.
Coming up: My December Infusion of Belatacept, which will be on 21 Dec.
So, until next time, May you ALL have a Very Merry Christmas!
And may you stay safe if you travel, and feel the love of family and friends throughout this Holiday season!
MERRY CHRISTMAS!
ScottW
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