As described in my last post, the previous month has been anything but normal. Fortunately, you already have the abnormal, so let's get to the routine...
Dialysis Weights:
31 Mar 16
Starting Weight: 101.1 Kg
Ending Weight: 96.5 KgWater Removed: 4.60 Kg
Start BP: 130/90 End BP: 118/88
02 Apr 16
Starting Weight: 99.8 Kg
Ending Weight: 96.9 Kg
Water Removed: 2.90 Kg
Start BP: 112/81 End BP: 119/68
05 Apr 16
Starting Weight: 101.3 Kg
Ending Weight: 97.9 Kg
Water Removed: 3.40 Kg
Start BP: 174/108 End BP: 124/87
07 Apr 16
Starting Weight: 100.6 Kg
Ending Weight: 96.7 Kg
Water Removed: 3.90 Kg
Start BP: 156/115 End BP: 100/68
09 Apr 16
Starting Weight: 100.4 Kg
Ending Weight: 96.9 Kg
Water Removed: 3.50 Kg
Start BP: 134/82 End BP: 111/90
12 Apr 16
Starting Weight: 100.3 Kg
Ending Weight: 96.9 Kg
Water Removed: 3.40 Kg
Start BP: 137/89 End BP: 149/122
14 Apr 16
Starting Weight: 100.0 Kg
Ending Weight: 96.7 Kg
Water Removed: 3.30 Kg
Start BP: 130/76 End BP: 109/75
16 Apr 16
Starting Weight: 99.6 Kg
Ending Weight: 96.7 Kg
Water Removed: 2.90 Kg
Start BP: 128/91 End BP: 138/99
19 Apr 16
Starting Weight: 101.4 Kg
Ending Weight: 96.7 Kg
Water Removed: 4.70 Kg
Start BP: 150/91 End BP: 110/80
21 Apr 16
Starting Weight: 99.7 Kg
Ending Weight: 96.5 Kg
Water Removed: 3.20 Kg
Start BP: 139/86 End BP: 115/88
23 Apr 16
Starting Weight: 99.7 Kg
Ending Weight: 96.3 Kg
Water Removed: 3.40 Kg
Start BP: 113/77 End BP: 139/100
26 Apr 16
Starting Weight: 101.5 Kg
Ending Weight: 97.2 Kg
Water Removed: 4.30 Kg
Start BP: 164/104 End BP: 104/64
*28 Apr 16*
Starting Weight: 100.2 Kg
Ending Weight: 98.2 Kg
Water Removed: 2.00 Kg
Start BP: 122/33 End BP: 106/85
*Start of latest surgery phase
30 Apr 16
Starting Weight: 103.1 Kg
Ending Weight: 99.4 Kg
Water Removed: 3.70 Kg
Start BP: 154/96 End BP: 143/64
*I did not record the two extra dialysis sessions this week;
only the normal T/Th/Sa sessions.
03 May 16
Starting Weight: 101.0 Kg
Ending Weight: 98.4 Kg
Water Removed: 2.70 Kg
Start BP: 141/99 End BP: 112/72
05 May 16
Starting Weight: 102.5 Kg
Ending Weight: 99.6 Kg
Water Removed: 2.90 Kg
Start BP: 136/83 End BP: 125/87
07 May 16
Starting Weight: 103.6 Kg
Ending Weight: 100.3 Kg
Water Removed: 3.30 Kg
Start BP: 173/107 End BP: 132/64
10 May 16
Starting Weight: 103.6 Kg
Ending Weight: 99.9 Kg
Water Removed: 3.70 Kg
Start BP: 150/87 End BP: 106/69
12 May 16
Starting Weight: 102.3 Kg
Ending Weight: 99.6 Kg
Water Removed: 2.70 Kg
Start BP: 163/91 End BP: 136/85
14 May 16
Starting Weight: 102.5 Kg
Ending Weight: 99.8 Kg
Water Removed: 2.70 Kg
Start BP: 161/98 End BP: 136/94
17 May 16
Starting Weight: 103.8 Kg
Ending Weight: 100.2 Kg
Water Removed: 3.60 Kg
Start BP: 155/109 End BP: 118/76
19 May 16
Starting Weight: 102.6 Kg
Ending Weight: 99.7 Kg
Water Removed: 2.50 Kg
Start BP: 161/101 End BP: 119/92
21 May 16
Starting Weight: 102.6 Kg
Ending Weight: 99.6 Kg
Water Removed: 3.00 Kg
Start BP: 158/97 End BP: 128/79
24 May 16
Starting Weight: 103.3 Kg
Ending Weight: 99.8 Kg
Water Removed: 3.50 Kg
Start BP: 163/100 End BP: 113/73
The new dry weight of 99.5 Kg is evident. However, the goal of keeping my post-D weight above 110 systoloic is happening every treatment (Tx). I am still waffling about about the dry weight, and may even decrease it by a half kilo just to see what happens. We'll see...
May 2016 Labs:
(Again, due to the April/early May surgeries, I am skipping the April 2016 Labs)
*Albumin (17 May): 3.80 g/dL (-0.30 from 22 Mar)
(A measure of Protein in the blood) NR (Normal Range) 4.0 g/dL or Higher
*Hemoglobin (17 May): 9.9 G/dL (-1.00 from 22 Mar)
(A Measure of Anemia)
*Ca Corrected (03 May): 9.90 mg/dL (+0.10mg/dL from 02 Mar)
(A measure of Heart and Bone health) NR 8.40 to 10.20 mg/dL
*Phosphorous (07 May): 4.30 mg/dL (-0.20 mg/dL from 12 Mar)
(High Phosphorous affects the health of your Heart and Bones) NR 3.0 to 5.5 mg/dL
*PTH Intact (17 May): 222 pg/mL (-171 pg/mL 22 Mar)
(A measure of Vitamin D absorption and bone and tissue health) NR 150 to 600 pg/mL
*K+ (17 May): 5.4 mEq/L (-0.1 mEq/L from 22 Mar)
(Proper potassium levels keep your nerves and muscles working well) NR 3.5 to 5.5 mEq/L
*spKdt/V Dialysis (03 May): 1.48 (-0.13 from 08 Mar)
(A measure of the effectiveness of dialysis and blood filtering.) NR 1.20 or Higher
I don't know what else to catch up on because of everything I wrote about the multiple surgeries, extra dialysis sessions, etc. Let's see...
Because of the surgeries my sleep is all out of whack...again. I get anywhere from 2-11 hours at any given time, and will often nap off and on even when I've had lots of sleep over a twenty four hour period. Even my Post-D naps are furtive, at best. As times gets on past they surgeries, I'm confident the sleep will get turned around.
My appetite is also off...badly. However, the surgeries again will wreak havoc on anyone's appetite. This too will get turned around; though it might take a bit longer than normal.
My headaches have stayed consistent over the past two months, as has my use of T3's to combat them. I am so happy that I finally have an effective means to fight these nasty TMD headaches. I spent over 15 years dealing with those migraine-like headaches with no effective means to tamp them down. Talk about miserable...
My energy level has also been greatly reduced because of the surgeries. At three weeks post-surgery, I am finally seeing my energy uptick. In a few more weeks, I expect to be back to normal...well, as normal as my kidney-less, dialysis addled body can be! :o)
Ever since the surgeries my feet have been ablaze with the neuropathy. I am burning through a twenty pound bag of ice every three days fighting to get the burning under control. Every time I think I've done it, the neuropathy ramps up again and I am thrusting both feet back into an ice water bath. It has gotten better, and I will keep up my efforts to get it under control again.
...Wow! those surgeries really screwed up a lot of things!
I think that's about it for today. If I think of anything else, I'll add it on to the end of this one.
The journey continues... Thanks for staying with me!
Good Health to All!
ScottW
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