First off, Today is June 6th, and it is the 70th Anniversary of Operation Overlord; the day Allied forces breached Fortress Europe; the day the end of the European side of WWII began. Many brave men--on all sides-- lost their lives that day on the five beaches of Normandy.
It is our duty to remember these men from the Greatest Generation who so bravely, selflessly waded ashore under a terrifying storm of bullets and cannon fire in order to begin the liberation of France, Belgium and so many other nations. Many of our finest young men failed to return to their families; though their sacrifice will never be forgotten.
Every year I offer a prayer of thanks to these gallant men who paid the ultimate price for our freedom.
As always, my thanks are but few words and feeble; while your sacrifice was extraordinary.
Thank You.
--------------------------------------------------------------------------------------------------------------
Now, after that incredibly important note, let's get on with the latest blog...
Dialysis Weights:
29 May 14
Starting Weight: 102.1 Kg
Ending Weight: 99.4 Kg
Water Removed: 2.70 Kg
31 May 14
Starting Weight: 101.9 Kg
Ending Weight: 99.2 Kg
Water Removed: 2.70 Kg
03 Jun 14
Starting Weight: 103.9 Kg
Ending Weight: 99.4 Kg
Water Removed: 4.50 Kg
05 Jun 14
Starting Weight: 101.9 Kg
Ending Weight: 99.3 Kg
Water Removed: 2.60 Kg
Great weights going into, and great weights afterwards. I seem to have control of my water gains, and my body isn't giving back too much. This is good. It's looking like my body is finally recovered from my surgery back in November--(It's been THAT long ago?!)--as the wide swings in weight are gone, and I haven't had any fluid buildup in my lungs in several months.
Plus, my sleep is deeper, my energy is a little better, and I am feeling a little better every day. In fact, I haven't had any vomiting now in almost three weeks. The constant nausea is decreased, my headache is not as intense, and I've had several people remark to myself (or my wife) how much better I'm looking from the pre-surgery days. I'll take those comments any day of the week!
On the other hand, healing is slow, as is my overall progress. This frustrates me every so often; but I remind myself that I had major surgery, am still on dialysis three times a week, and have no kidneys. This is going to take time.
Good news...
After speaking with a Clinic doc yesterday, I am cutting my Atenolol in half once again. Why? Because, after more than three weeks since initially halving my daily dose--enough time to drop the therapeutic level to its current dose--my BP is better than great. I went into yesterday's dialysis with a 113/75 BP. My exit BP was 100/83.
So, the Atenolol, still at 1 dose/day, is down to 25 total mg. In a few weeks, if my BP continues to be stable and low, we may cut the Atenolol out all together.
Labs were drawn on Tuesday, and I have all the latest:
*Albumin (20 May): 4.00 g/dL (+0.20 g/dL from 22 Apr)
(A measure of Protein in the blood) NR (Normal Range) 4.0 g/dL or Higher
*Hemoglobin (03 Jun): 10.00 g/dL (-1.20 g/dL from 06 May)
(A Measure of Anemia)
*Ca Corrected (03 Jun): 9.70 mg/dL (-1.00 mg/dL from 06 May)
(A measure of Heart and Bone health) NR 8.40 to 10.20 mg/dL
*Phosphorous (03 Jun): 5.70 mg/dL (-2.20 mg/dL from 06 May)
(High Phosphorous affects the health of your Heart and Bones) NR 3.0 to 5.5 mg/dL
*PTH Intact (20 May): 255 pg/mL (+104 pg/mL from 22 Apr)
(A measure of Vitamin D absorption and bone and tissue health) NR 150 to 600 pg/mL
*K+ (03 Jun): 6.10 mEq/L (+0.50 mEq/L from 06 May)
(Proper potassium levels keep your nerves and muscles working well) NR 3.5 to 5.5 mEq/L
*spKdt/V Dialysis (03 Jun): 1.24 (-0.20 from 06 May)
(A measure of the effectiveness of dialysis and blood filtering.) NR 1.20 or Higher
The phosphorous drop is huge, so the Nutritionist has ordered another draw tomorrow to verify this number. If it holds up, the GREAT! I've been working on this, and my efforts paid off. If the number rebounds higher, then I still have lots more work to do.
The Potassium (K+) remains elevated in spite of my cutting out the obvious sources of potassium altogether. I will continue trying to find potassium in my foods and eliminate those, as well.
After I was finished with my dialysis yesterday, one of the buttonhole clots popped, and I was bleeding all over the place. Luckily I hadn't left the clinic, so I immediately clamped my hand over the buttonhole, and called for a nurse. They came over, cleaned me up and put fresh bandages on the sites; after which I held for another twenty minutes, then let it sit another ten beyond that before I headed out.
Any time a clot pops on you, immediately apply pressure to the site. If you leave it, you could, with the proper amount of time, Exsanguinate--bleed out. I don't care if you're squeamish around blood--you put one hand on that site, and THEN get a nurse. Stopping the blood is more important than anything!
Alright, that's all I've got for today.
Have a great week! May it be successful and filled with all that you need.
Good Health to All!
ScottW
Friday, June 6, 2014
Friday, May 30, 2014
UNOS News at Transplant Living
Here is the latest newsletter from Transplant Living--a division of UNOS (United Network of Organ Sharing). It has some great info in it, so please take some time to read through.
Thanks!
ScottW
Thanks!
ScottW
Transplant immunosuppressant drugs to remain a Medicare Part D benefit >
CMS announced that it would retain the existing “protected class” status for immunosuppressant medications available as a benefit under Medicare Part D coverage.
Average Daily Organ Placement On The Rise >
During April, staff of the UNOS Organ Center helped the transplant community place an average of 38.5 organs per day—an all-time monthly record..
OPTN/UNOS leadership briefs Congressional staff members on key policy issues >
On May 21, UNOS Chief Executive Officer Brian Shepard and chairs of three OPTN/UNOS committees briefed staff members of the Congress of the United States on policy issues under discussion or implementation.
Infections and immunity >
There are three general time frames during which infection can occur in the post-transplant period: first month, second through sixth month, and after the sixth month.
Urine test improves detection of alcohol use in liver transplant patients >
When used together, urinary ethyl glucuronide (uEtG) and the Alcohol Use Disorders Identification Test for alcohol consumption (AUDIT-c) improve the detection of alcohol consumption in liver transplant candidates and recipients, according to a recent study.
Transplant immunosuppressant sirolimus may reduce HIV persistence >
HIV persistence is reduced in association with immunosuppressants, especially sirolimus, used after kidney transplantation, according to results from the Solid Organ Transplantation in HIV: Multi-Site Study. |
Wednesday, May 28, 2014
28 May 2014
See? What did I tell you?
I said that time is just zooming by; and here it is a full twenty days since my last posting! Even though I didn't sleep last night, I can't let this go one more day...
Dialysis Weights:
10 May 14
Starting Weight: 103.5 Kg
Ending Weight: 99.6 Kg
Water Removed: 3.90 Kg
13 May 14
Starting Weight: 105.4 Kg
Ending Weight: 100.7 Kg
Water Removed: 4.70 Kg
15 May 14
Starting Weight: 103.5 Kg
Ending Weight: 98.8 Kg
Water Removed: 4.70 Kg
17 May 14
Starting Weight: 102.5 Kg
Ending Weight: 99.9 Kg
Water Removed: 2.60 Kg
20 May 14
Starting Weight: 103.0 Kg
Ending Weight: 99.4 Kg
Water Removed: 3.60 Kg
22 May 14
Starting Weight: 101.6 Kg
Ending Weight: 99.1 Kg
Water Removed: 2.50 Kg
24 May 14
Starting Weight: 102.0 Kg
Ending Weight: 98.8 Kg
Water Removed: 3.20 Kg
27 May 14
Starting Weight: 103.2 Kg
Ending Weight: 99.3 Kg
Water Removed: 3.90 Kg
Aside from the one post-weekend day, my entry weights have again remained consistent. At this stage of the game, 'consistency' is a very good thing! It means that I am controlling my fluids, controlling my food intake and getting at least a little exercise.
On the exit weights, I have obviously been giving back too much, at times. There isn't much of anything I can do about this as I have zero conscious control over how my body does during dialysis. Luckily, the cramping has been minimal. However, I have been dizzy on standing almost always; but this is also due to my low BP that is happening following each treatment (Tx).
And speaking of Blood Pressure...Last week, after meeting with my Nephrologist [during Tx], he took me off one half of my BP med--the Atenolol. So, at this point I am taking just 50 mg/day; even then my BP is still on the low side. It will take about three full weeks before the lower dosage can be properly gauged in its effectiveness as it takes that long for the higher dose to be eliminated from the body. In other words, the 'therapeutic level' must reduce to the current level of meds; and that simply takes time.
Right now, my avg BP entering dialysis is about 130/75. On exit it is 103/64. The top number is good; but the exit number is actually too low. That is why the med reduction happened. I need to have the exit number be a bit higher...somewhere in the 110/70-120/80 range. The dizziness I am having should stop once I achieve that.
Since my last update [on 09 May], I have run the gamut in how I have been feeling. There were a number of days in a row that saw me wake up and immediately go into the bathroom to throw up, then feel really lousy the rest of the day. I was keeping Zofran (anti-emetic) in my regularly for over a full week. Since then things have calmed down. I still get nauseated, but I haven't been vomiting in eight days now. As always, I will certainly take any small victories I can attain.
My sleep has been improving. I seem to be sleeping deeper, and all of my dreams are in my complete control. I'm still getting too much sleep; but I seem to be dragging less than just a couple of weeks ago.
My appetite has been awful. Most days I can barely taste food; and everything is just unappealing. I am often eating only because I need food in my body--which is discouraging because I need to eat lots of protein to remain as healthy as I can. Hopefully this is just part of the ebb and flow that my appetite has been going through. Time will tell.
That's all I have now. My lack of sleep is catching up to me, so I am going to go sleep in my recliner for a few hours.
Good Health to All!
ScottW
I said that time is just zooming by; and here it is a full twenty days since my last posting! Even though I didn't sleep last night, I can't let this go one more day...
Dialysis Weights:
10 May 14
Starting Weight: 103.5 Kg
Ending Weight: 99.6 Kg
Water Removed: 3.90 Kg
13 May 14
Starting Weight: 105.4 Kg
Ending Weight: 100.7 Kg
Water Removed: 4.70 Kg
15 May 14
Starting Weight: 103.5 Kg
Ending Weight: 98.8 Kg
Water Removed: 4.70 Kg
17 May 14
Starting Weight: 102.5 Kg
Ending Weight: 99.9 Kg
Water Removed: 2.60 Kg
20 May 14
Starting Weight: 103.0 Kg
Ending Weight: 99.4 Kg
Water Removed: 3.60 Kg
22 May 14
Starting Weight: 101.6 Kg
Ending Weight: 99.1 Kg
Water Removed: 2.50 Kg
24 May 14
Starting Weight: 102.0 Kg
Ending Weight: 98.8 Kg
Water Removed: 3.20 Kg
27 May 14
Starting Weight: 103.2 Kg
Ending Weight: 99.3 Kg
Water Removed: 3.90 Kg
Aside from the one post-weekend day, my entry weights have again remained consistent. At this stage of the game, 'consistency' is a very good thing! It means that I am controlling my fluids, controlling my food intake and getting at least a little exercise.
On the exit weights, I have obviously been giving back too much, at times. There isn't much of anything I can do about this as I have zero conscious control over how my body does during dialysis. Luckily, the cramping has been minimal. However, I have been dizzy on standing almost always; but this is also due to my low BP that is happening following each treatment (Tx).
And speaking of Blood Pressure...Last week, after meeting with my Nephrologist [during Tx], he took me off one half of my BP med--the Atenolol. So, at this point I am taking just 50 mg/day; even then my BP is still on the low side. It will take about three full weeks before the lower dosage can be properly gauged in its effectiveness as it takes that long for the higher dose to be eliminated from the body. In other words, the 'therapeutic level' must reduce to the current level of meds; and that simply takes time.
Right now, my avg BP entering dialysis is about 130/75. On exit it is 103/64. The top number is good; but the exit number is actually too low. That is why the med reduction happened. I need to have the exit number be a bit higher...somewhere in the 110/70-120/80 range. The dizziness I am having should stop once I achieve that.
Since my last update [on 09 May], I have run the gamut in how I have been feeling. There were a number of days in a row that saw me wake up and immediately go into the bathroom to throw up, then feel really lousy the rest of the day. I was keeping Zofran (anti-emetic) in my regularly for over a full week. Since then things have calmed down. I still get nauseated, but I haven't been vomiting in eight days now. As always, I will certainly take any small victories I can attain.
My sleep has been improving. I seem to be sleeping deeper, and all of my dreams are in my complete control. I'm still getting too much sleep; but I seem to be dragging less than just a couple of weeks ago.
My appetite has been awful. Most days I can barely taste food; and everything is just unappealing. I am often eating only because I need food in my body--which is discouraging because I need to eat lots of protein to remain as healthy as I can. Hopefully this is just part of the ebb and flow that my appetite has been going through. Time will tell.
That's all I have now. My lack of sleep is catching up to me, so I am going to go sleep in my recliner for a few hours.
Good Health to All!
ScottW
Friday, May 9, 2014
09 May 2014
It is amazing how fast time is passing between my posts. I think it's only been four or five days, when in reality, it's over ten. So let's get on with it...
Dialysis Weights:
26 Apr 14
Starting Weight: 103.9 Kg
Ending Weight: 100.0 Kg
Water Removed: 3.90 Kg
29 Apr 14
Starting Weight: 105.3 Kg
Ending Weight: 101.1 Kg
Water Removed: 4.20 Kg
01 May 14
Starting Weight: 105.3 Kg
Ending Weight: 100.5 Kg
Water Removed: 4.80 Kg
03 May 14
Starting Weight: 104.2 Kg
Ending Weight: 99.7 Kg
Water Removed: 4.50 Kg
06 May 14
Starting Weight: 103.6 Kg
Ending Weight: 99.9 Kg
Water Removed: 3.70 Kg
08 May 14
Starting Weight: 104.3 Kg
Ending Weight: 99.5 Kg
Water Removed: 4.80 Kg
As you can see, I began to lower my dry weight below 100 Kg. So far, the cramping has been minimal, but I have had frequent dizziness at home. As you lower your dry weight, your blood pressure naturally lowers, as well. Until your body compensates full-time, you will experience periods of dizziness when standing up. Most frequently these wobble-inducing drops in blood pressure happen upon standing from any sitting or supine position. Gravity, in this case, can be a serious issue; so if you experience dizziness on standing, lean against a wall, a chair or anything else that could help you stop yourself from falling to the ground. For me, the symptoms pass within five seconds, or so. If it goes on for what seems to be too long, tell your physician a/o clinic nurses. Getting your body past any serious drops in BP are vital, so be honest and forthright about anything you experience!
My latest labs are in. Some are good, others, not so much.
*Albumin (22 Apr): 3.80 g/dL (-0.60 g/dL from 17 Mar)
(A measure of Protein in the blood) NR (Normal Range) 4.0 g/dL or Higher
*Hemoglobin (06 May): 11.2 g/dL (+0.40 g/dL from 08 Apr)
(A Measure of Anemia)
*Ca Corrected (06 May): 9.80 mg/dL (+0.50 mg/dL from 08 Apr)
(A measure of Heart and Bone health) NR 8.40 to 10.20 mg/dL
*Phosphorous (06 May): 7.90 mg/dL (+0.50 mg/dL from 08 Apr)
(High Phosphorous affects the health of your Heart and Bones) NR 3.0 to 5.5 mg/dL
*PTH Intact (22 Apr): 151 pg/mL (-94 pg/mL from 17 Mar)
(A measure of Vitamin D absorption and bone and tissue health) NR 150 to 600 pg/mL
*K+ (06 May): 5.6 mEq/L (-0.20 mEq/L from 08 Apr)
(Proper potassium levels keep your nerves and muscles working well) NR 3.5 to 5.5 mEq/L
*spKdt/V Dialysis (06 May): 1.44 (-0.14 from 08 Apr)
(A measure of the effectiveness of dialysis and blood filtering.) NR 1.20 or Higher
There isn't much green on these labs! The Albumin drop is particularly concerning. This means that I am not getting sufficient protein in my body; which I need right now. With all the eggs and meats I am consuming, I will have to speak with my DaVita Nutritionist about getting that number up. If the low Albumin number continues, there will be effects in my muscles, heart, blood production, etc. I really don't want to find out what those effects are!
The Potassium (K+) has lowered to just above the top range. This is a definite improvement. I have accomplished this by cutting out the fruit juices, eliminating fresh fruits and tomatoes. (Sad face as more foods have to be left behind...)
However, the further rise in my Phosphorous is very troubling. I don't know how much more I can do to control this. I suppose there are always foods I can eliminate in order to achieve the desired range. I know that the Nutritionist will be speaking with me on Tuesday about this number. The number of Binders (Renvela) that I am taking has already increased; but it can always be upped again. I will keep you updated on this.
This past Sunday was a great day! I felt good when I awoke, and asked my wife if she wanted to go on a drive--which we did. We went to a nice park on the Provo River and enjoyed nature. It was the first time I felt up to a drive since before my Nephrectomy in November; so it had definitely been awhile. I greatly enjoyed the time out of the house, and I loved sitting and listening to the wind, the water and all the sounds of birds, puppies playing nearby, etc. It was extremely rejuvenating to my soul!
Then when Monday rolled around, it was the complete opposite. I awoke extremely nauseated, dry heaved for about twenty minutes, had numerous bouts of diarrhea, and, despite multiple doses of Zofran, was nauseated the entire day. It sucked! At least I had the memory of the previous day to help me through such a terrible day. Since then, I have been up and down. Mostly feeling lousy.
I saw my Nephrologist yesterday for my latest office visit. He really didn't have much to say because I am doing pretty well, overall. I follow physician orders, follow dialysis clinic guidelines, and actively work at home to ensure I am doing everything I can to be as healthy as I can possibly be. When you do all of that, you will not have too much to discuss with your doctor. And really, doing everything you can to ensure your best possible health--even under these circumstances--really isn't hard at all. You simply have to decide that this is what you'll do, and then you do it. Simple. Easy. Unfortunately, from what my Nephrologist tells me, my approach is definitely NOT the norm amongst his patients. They generally fight him on most aspects of their care, and their health suffers because of their adamant positions. Too bad; because it really IS easy to do what you have to! Being stubborn just isn't worth the consequences of not following instructions.
I had a friend offer her kidney this last week; but her blood type is incompatible with mine. She felt bad, but I assured her it was no big deal. Nothing has changed because she cannot donate. I really...REALLY appreciate the offer! It was a nice thought to know that someone was willing to do this for me.
And that's it. I am all done with this for today.
I am thinking of maybe doing some posts on video. Any thoughts? (Post them in the comments, if you do!)
Have a great week, everyone!
Good Health to All!
ScottW
Dialysis Weights:
26 Apr 14
Starting Weight: 103.9 Kg
Ending Weight: 100.0 Kg
Water Removed: 3.90 Kg
29 Apr 14
Starting Weight: 105.3 Kg
Ending Weight: 101.1 Kg
Water Removed: 4.20 Kg
01 May 14
Starting Weight: 105.3 Kg
Ending Weight: 100.5 Kg
Water Removed: 4.80 Kg
03 May 14
Starting Weight: 104.2 Kg
Ending Weight: 99.7 Kg
Water Removed: 4.50 Kg
06 May 14
Starting Weight: 103.6 Kg
Ending Weight: 99.9 Kg
Water Removed: 3.70 Kg
08 May 14
Starting Weight: 104.3 Kg
Ending Weight: 99.5 Kg
Water Removed: 4.80 Kg
As you can see, I began to lower my dry weight below 100 Kg. So far, the cramping has been minimal, but I have had frequent dizziness at home. As you lower your dry weight, your blood pressure naturally lowers, as well. Until your body compensates full-time, you will experience periods of dizziness when standing up. Most frequently these wobble-inducing drops in blood pressure happen upon standing from any sitting or supine position. Gravity, in this case, can be a serious issue; so if you experience dizziness on standing, lean against a wall, a chair or anything else that could help you stop yourself from falling to the ground. For me, the symptoms pass within five seconds, or so. If it goes on for what seems to be too long, tell your physician a/o clinic nurses. Getting your body past any serious drops in BP are vital, so be honest and forthright about anything you experience!
My latest labs are in. Some are good, others, not so much.
*Albumin (22 Apr): 3.80 g/dL (-0.60 g/dL from 17 Mar)
(A measure of Protein in the blood) NR (Normal Range) 4.0 g/dL or Higher
*Hemoglobin (06 May): 11.2 g/dL (+0.40 g/dL from 08 Apr)
(A Measure of Anemia)
*Ca Corrected (06 May): 9.80 mg/dL (+0.50 mg/dL from 08 Apr)
(A measure of Heart and Bone health) NR 8.40 to 10.20 mg/dL
*Phosphorous (06 May): 7.90 mg/dL (+0.50 mg/dL from 08 Apr)
(High Phosphorous affects the health of your Heart and Bones) NR 3.0 to 5.5 mg/dL
*PTH Intact (22 Apr): 151 pg/mL (-94 pg/mL from 17 Mar)
(A measure of Vitamin D absorption and bone and tissue health) NR 150 to 600 pg/mL
*K+ (06 May): 5.6 mEq/L (-0.20 mEq/L from 08 Apr)
(Proper potassium levels keep your nerves and muscles working well) NR 3.5 to 5.5 mEq/L
*spKdt/V Dialysis (06 May): 1.44 (-0.14 from 08 Apr)
(A measure of the effectiveness of dialysis and blood filtering.) NR 1.20 or Higher
There isn't much green on these labs! The Albumin drop is particularly concerning. This means that I am not getting sufficient protein in my body; which I need right now. With all the eggs and meats I am consuming, I will have to speak with my DaVita Nutritionist about getting that number up. If the low Albumin number continues, there will be effects in my muscles, heart, blood production, etc. I really don't want to find out what those effects are!
The Potassium (K+) has lowered to just above the top range. This is a definite improvement. I have accomplished this by cutting out the fruit juices, eliminating fresh fruits and tomatoes. (Sad face as more foods have to be left behind...)
However, the further rise in my Phosphorous is very troubling. I don't know how much more I can do to control this. I suppose there are always foods I can eliminate in order to achieve the desired range. I know that the Nutritionist will be speaking with me on Tuesday about this number. The number of Binders (Renvela) that I am taking has already increased; but it can always be upped again. I will keep you updated on this.
This past Sunday was a great day! I felt good when I awoke, and asked my wife if she wanted to go on a drive--which we did. We went to a nice park on the Provo River and enjoyed nature. It was the first time I felt up to a drive since before my Nephrectomy in November; so it had definitely been awhile. I greatly enjoyed the time out of the house, and I loved sitting and listening to the wind, the water and all the sounds of birds, puppies playing nearby, etc. It was extremely rejuvenating to my soul!
Then when Monday rolled around, it was the complete opposite. I awoke extremely nauseated, dry heaved for about twenty minutes, had numerous bouts of diarrhea, and, despite multiple doses of Zofran, was nauseated the entire day. It sucked! At least I had the memory of the previous day to help me through such a terrible day. Since then, I have been up and down. Mostly feeling lousy.
I saw my Nephrologist yesterday for my latest office visit. He really didn't have much to say because I am doing pretty well, overall. I follow physician orders, follow dialysis clinic guidelines, and actively work at home to ensure I am doing everything I can to be as healthy as I can possibly be. When you do all of that, you will not have too much to discuss with your doctor. And really, doing everything you can to ensure your best possible health--even under these circumstances--really isn't hard at all. You simply have to decide that this is what you'll do, and then you do it. Simple. Easy. Unfortunately, from what my Nephrologist tells me, my approach is definitely NOT the norm amongst his patients. They generally fight him on most aspects of their care, and their health suffers because of their adamant positions. Too bad; because it really IS easy to do what you have to! Being stubborn just isn't worth the consequences of not following instructions.
I had a friend offer her kidney this last week; but her blood type is incompatible with mine. She felt bad, but I assured her it was no big deal. Nothing has changed because she cannot donate. I really...REALLY appreciate the offer! It was a nice thought to know that someone was willing to do this for me.
And that's it. I am all done with this for today.
I am thinking of maybe doing some posts on video. Any thoughts? (Post them in the comments, if you do!)
Have a great week, everyone!
Good Health to All!
ScottW
Friday, April 25, 2014
25 April 2014
I've been needing to update the blog for a while, and really have no good reason why I haven't. So, let's get to it...
Dialysis Weights
08 Apr 14
Starting Weight: 105.0 Kg
Ending Weight: 101.3 Kg
Water Removed: 3.70 Kg
10 Apr 14
Starting Weight: 104.8 Kg
Ending Weight: 100.3 Kg
Water Removed: 4.50 Kg
12 Apr 14
Starting Weight: 104.1 Kg
Ending Weight: 99.8 Kg
Water Removed: 4.30 Kg
15 Apr 14
Starting Weight: 104.9 Kg
Ending Weight: 100.7 Kg
Water Removed: 4.20 Kg
17 Apr 14
Starting Weight: 103.2 Kg
Ending Weight: 99.9 Kg
Water Removed: 3.30 Kg
19 Apr 14
Starting Weight: 104.3 Kg
Ending Weight: 100.0 Kg
Water Removed: 4.30 Kg
22 Apr 14
Starting Weight: 106.4 Kg
Ending Weight: 101.9 Kg
Water Removed: 4.50 Kg
24 Apr 14
Starting Weight: 104.9 Kg
Ending Weight: 100.4 Kg
Water Removed: 4.50 Kg
Aside from the one Tuesday--my post-'weekend' day--my weights are fairly consistent. This means that I am doing things right in controlling my fluid intake. Limiting fluids never really gets easy; but at least you can become somewhat used to doing so. I am almost always thirsty; but at the same time, I know that if I give in and indulge in that extra liquid, my feet will swell, fluid will get into my lungs, I'll have trouble breathing and sleeping, possibly go to the ER, my BP will elevate to dangerous levels, my Heart rate will increase and then I'll spend at least three or four treatments getting my weight back under control. Is drinking extra milk, water or whatever else really worth all that?
(Umm....
......No.)
The lower canulation site on my fistula has been incredibly sore lately. I'm pretty sure a nerve is directly over or near both button holes. Add in the fact that both sites are in a constant state of healing, and you will experience pain from time to time. For me, that lower button hole bothers me most. Additionally, I still have bruising on my lower arm from the whole debacle after Christmas; so the arm really hasn't had the chance to fully recover. Until I get a kidney, the arm may bother me without relief.
This week has again had its challenges. I've been nauseated frequently, vomited, had diarrhea, had my breathing restricted, and my appetite has been off resulting in most foods being completely unappetizing. In the midst of all this, I have to eat, have to drink and have to get to my dialysis sessions. What fun!
My sleep is all over the place. In all, I get around eleven hours a day. Dialysis days are, or course, the most sleeping hours, at about 16 hours total in the thirty hours around each treatment. I never know when I'll suddenly become tired and doze off for thirty minutes or more. I haven't gotten a full night of sleep in weeks, instead sleeping whenever and wherever it comes upon me; whether that's on the bed, sitting in my computer chair, sitting in the living room, at dialysis, etc. I used to be frustrated by that; Now, I just roll with it and sleep as it hits me. There really isn't much use fighting it.
I've had a few friends tell me this last week that I am looking better, healthier. It's nice to hear that after these last four years. Though I still easily tire, have no energy and rarely feel good, I am moving around quicker, have less vertigo, feel a bit more energetic and my skin tone is visibly improved. Not bad for someone with no kidneys!
My mental well-being continues to be great. With my kidneys out, the worst of all this is behind me. Being on the active list really helps my state of mind, too. Also, I continue to have the love and support of many people, without which I would be struggling mightily. Personally, I have found that the more support you have, the less likely it is that you will struggle with depression or anxiety regarding your journey. Plus, there are the multitude of prayers being given for me every day. Without the spiritual support, I would not have the strength to go through this every single day. Without a doubt, the prayers given, and my personal faith, are the greatest tools I have to fight the inevitable doubt and uncertainty that awaits anyone who struggles mentally with a chronic long-term illness. The comfort and certainty I feel every day cannot be explained away as coincidence, or my mind playing tricks on me. No, I am being supported spiritually in ways I cannot fathom, and my journey is made far easier because of it.
That's all I've got for today.
Have a great week!
Good Health to All!
ScottW
Dialysis Weights
08 Apr 14
Starting Weight: 105.0 Kg
Ending Weight: 101.3 Kg
Water Removed: 3.70 Kg
10 Apr 14
Starting Weight: 104.8 Kg
Ending Weight: 100.3 Kg
Water Removed: 4.50 Kg
12 Apr 14
Starting Weight: 104.1 Kg
Ending Weight: 99.8 Kg
Water Removed: 4.30 Kg
15 Apr 14
Starting Weight: 104.9 Kg
Ending Weight: 100.7 Kg
Water Removed: 4.20 Kg
17 Apr 14
Starting Weight: 103.2 Kg
Ending Weight: 99.9 Kg
Water Removed: 3.30 Kg
19 Apr 14
Starting Weight: 104.3 Kg
Ending Weight: 100.0 Kg
Water Removed: 4.30 Kg
22 Apr 14
Starting Weight: 106.4 Kg
Ending Weight: 101.9 Kg
Water Removed: 4.50 Kg
24 Apr 14
Starting Weight: 104.9 Kg
Ending Weight: 100.4 Kg
Water Removed: 4.50 Kg
Aside from the one Tuesday--my post-'weekend' day--my weights are fairly consistent. This means that I am doing things right in controlling my fluid intake. Limiting fluids never really gets easy; but at least you can become somewhat used to doing so. I am almost always thirsty; but at the same time, I know that if I give in and indulge in that extra liquid, my feet will swell, fluid will get into my lungs, I'll have trouble breathing and sleeping, possibly go to the ER, my BP will elevate to dangerous levels, my Heart rate will increase and then I'll spend at least three or four treatments getting my weight back under control. Is drinking extra milk, water or whatever else really worth all that?
(Umm....
......No.)
The lower canulation site on my fistula has been incredibly sore lately. I'm pretty sure a nerve is directly over or near both button holes. Add in the fact that both sites are in a constant state of healing, and you will experience pain from time to time. For me, that lower button hole bothers me most. Additionally, I still have bruising on my lower arm from the whole debacle after Christmas; so the arm really hasn't had the chance to fully recover. Until I get a kidney, the arm may bother me without relief.
This week has again had its challenges. I've been nauseated frequently, vomited, had diarrhea, had my breathing restricted, and my appetite has been off resulting in most foods being completely unappetizing. In the midst of all this, I have to eat, have to drink and have to get to my dialysis sessions. What fun!
My sleep is all over the place. In all, I get around eleven hours a day. Dialysis days are, or course, the most sleeping hours, at about 16 hours total in the thirty hours around each treatment. I never know when I'll suddenly become tired and doze off for thirty minutes or more. I haven't gotten a full night of sleep in weeks, instead sleeping whenever and wherever it comes upon me; whether that's on the bed, sitting in my computer chair, sitting in the living room, at dialysis, etc. I used to be frustrated by that; Now, I just roll with it and sleep as it hits me. There really isn't much use fighting it.
I've had a few friends tell me this last week that I am looking better, healthier. It's nice to hear that after these last four years. Though I still easily tire, have no energy and rarely feel good, I am moving around quicker, have less vertigo, feel a bit more energetic and my skin tone is visibly improved. Not bad for someone with no kidneys!
My mental well-being continues to be great. With my kidneys out, the worst of all this is behind me. Being on the active list really helps my state of mind, too. Also, I continue to have the love and support of many people, without which I would be struggling mightily. Personally, I have found that the more support you have, the less likely it is that you will struggle with depression or anxiety regarding your journey. Plus, there are the multitude of prayers being given for me every day. Without the spiritual support, I would not have the strength to go through this every single day. Without a doubt, the prayers given, and my personal faith, are the greatest tools I have to fight the inevitable doubt and uncertainty that awaits anyone who struggles mentally with a chronic long-term illness. The comfort and certainty I feel every day cannot be explained away as coincidence, or my mind playing tricks on me. No, I am being supported spiritually in ways I cannot fathom, and my journey is made far easier because of it.
That's all I've got for today.
Have a great week!
Good Health to All!
ScottW
Friday, April 11, 2014
11 April 2014
As promised, here are the results of this months' main lab draws:
*Albumin (17 Mar): 4.40 g/dL (+0.30 g/dL from 21 Jan)
(A measure of Protein in the blood) NR (Normal Range) 4.0 g/dL or Higher
*Hemoglobin (08 Apr): 10.8 g/dL (No Change from 17 Mar)
(A Measure of Anemia)
*Ca Corrected (08 Apr): 9.30 mg/dL (-0.30 mg/dL from 03 Mar)
(A measure of Heart and Bone health) NR 8.40 to 10.20 mg/dL
*Phosphorous (08 Apr): 7.40 mg/dL (+0.60 mg/dL from 08 Mar)
(High Phosphorous affects the health of your Heart and Bones) NR 3.0 to 5.5 mg/dL
*PTH Intact (17 Mar): 245 pg/mL (+26 pg/mL from 21 Jan)
(A measure of Vitamin D absorption and bone and tissue health) NR 150 to 600 pg/mL
*K+ (08 Apr): 5.8 mEq/L (+0.10 mEq/L from 17 Mar)
(Proper potassium levels keep your nerves and muscles working well) NR 3.5 to 5.5 mEq/L
*spKdt/V Dialysis (08 Apr): 1.58 (+0.24 from 03 Mar)
(A measure of the effectiveness of dialysis and blood filtering.) NR 1.20 or Higher
As you can see, both Albumin and PTH were not measured. I'm sure these will be drawn within the next week or two.
So, the Phosphorous and the Potassium are jumping around...again. I'm really surprised by the K+ increase because I am avoiding K+ as much as I possibly can. But, like phosphorous, potassium is in many foods that you simply wouldn't expect it to be; so you end up ingesting more than you expect.
I did awesome at dialysis yesterday. I went in only gaining 3.8 Kg's since Tuesday morning, and hit my target for water removal at 100.3 Kg.
My challenge since Thursday's Tx has been cramping. Both feet and both lower legs had lots of cramping after I arrived home, and sleeping was impossible for a couple of hours; until the muscles relaxed enough.
That's all I've got today. I only meant to give you the lab results.
Good Health to All!
ScottW
*Albumin (17 Mar): 4.40 g/dL (+0.30 g/dL from 21 Jan)
(A measure of Protein in the blood) NR (Normal Range) 4.0 g/dL or Higher
*Hemoglobin (08 Apr): 10.8 g/dL (No Change from 17 Mar)
(A Measure of Anemia)
*Ca Corrected (08 Apr): 9.30 mg/dL (-0.30 mg/dL from 03 Mar)
(A measure of Heart and Bone health) NR 8.40 to 10.20 mg/dL
*Phosphorous (08 Apr): 7.40 mg/dL (+0.60 mg/dL from 08 Mar)
(High Phosphorous affects the health of your Heart and Bones) NR 3.0 to 5.5 mg/dL
*PTH Intact (17 Mar): 245 pg/mL (+26 pg/mL from 21 Jan)
(A measure of Vitamin D absorption and bone and tissue health) NR 150 to 600 pg/mL
*K+ (08 Apr): 5.8 mEq/L (+0.10 mEq/L from 17 Mar)
(Proper potassium levels keep your nerves and muscles working well) NR 3.5 to 5.5 mEq/L
*spKdt/V Dialysis (08 Apr): 1.58 (+0.24 from 03 Mar)
(A measure of the effectiveness of dialysis and blood filtering.) NR 1.20 or Higher
As you can see, both Albumin and PTH were not measured. I'm sure these will be drawn within the next week or two.
So, the Phosphorous and the Potassium are jumping around...again. I'm really surprised by the K+ increase because I am avoiding K+ as much as I possibly can. But, like phosphorous, potassium is in many foods that you simply wouldn't expect it to be; so you end up ingesting more than you expect.
I did awesome at dialysis yesterday. I went in only gaining 3.8 Kg's since Tuesday morning, and hit my target for water removal at 100.3 Kg.
My challenge since Thursday's Tx has been cramping. Both feet and both lower legs had lots of cramping after I arrived home, and sleeping was impossible for a couple of hours; until the muscles relaxed enough.
That's all I've got today. I only meant to give you the lab results.
Good Health to All!
ScottW
Sunday, April 6, 2014
06 April 2014
I've reached a new milestone...well, at least it is for me.
This week, I successfully hit 100 Kg's all three treatment days, and I have changed my dry weight to a flat 100 Kg's. From when I first started, I have now dropped my dry weight from 104.5 Kg's. That's a total of 9.90 pounds of useless water weight.
Dialysis Weights:
22 Mar 13
Starting Weight: 105.0 Kg
Ending Weight: 100.5 Kg
Water Removed: 4.50 Kg
25 Mar 14
Starting Weight: 106.4 Kg
Ending Weight: 101.6 Kg
Water Removed: 4.80 Kg
27 Mar 14
Starting Weight: 105.5 Kg
Ending Weight: 100.9 Kg
Water Removed: 4.60 Kg
29 Mar 14
Starting Weight: 104.5 Kg
Ending Weight: 100.2 Kg
Water Removed: 4.30 Kg
01 Apr 14
Starting Weight: 104.8 Kg
Ending Weight: 100.6 Kg
Water Removed: 4.20 Kg
03 Apr 14
Starting Weight: 104.5 Kg
Ending Weight: 100.3 Kg
Water Removed: 4.20 Kg
05 Apr 14
Starting Weight: 103.3 Kg
Ending Weight: 100.1 Kg
Water Removed: 3.20 Kg
[Actually,] That's a total of five consecutive treatments that I have hit the 100 Kg mark. It's been a long, slow and somewhat painful journey, but it is well worth the effort. I have [generally] less cramping, NO...that NO fluid in my lungs, and my average Blood Pressure has accordingly dropped as well. Yesterday I entered dialysis at 146/92, and left at veritably perfect 120/68. That BP is exactly what my Nephrologist wants me to have!
I don't have the monthly labs yet; they haven't been drawn so far this month. More than likely, they will be pulled on Tuesday, with the results available later next week. When I have the numbers, I'll get them posted.
Still no diarrhea. It's now going on three months since the last incidence. Overall, my bowels are fairly regular in timing and form. Anything irregular is not a good thing, and should always be reported to your physicians.
My appetite and tastes have been changing the last few weeks. I don't know if it is because of the lack of kidneys, or some other reason. All I know is that foods are bland, and tasteless, my hunger is increasing, and I don't get any satisfaction from a good meal. It's frustrating to not have anything to eat that sounds good. My wife really is a Saint when it comes to helping me figure out what to eat after dialysis. Most days, I have no clue, and she gently guides me along until I make a decision. Spouses, if you find yourself in this position, your husband or wife really doesn't know what they want to eat! Please give an abundance of patience and understanding to whomever you are caring for, and know that they are just as frustrated, and at as much as a loss as you are at not knowing what they want to eat.
My energy has increased probably 10%. I am moving quicker--not that most people would notice with as slow as I move most of the time--I am making decisions quicker than anytime in the last two years, and my brain seems to be a bit sharper these days. While the steps aren't huge, I am making positive forward progress. A little every day will go a long way towards recovery in the long run.
That's all I can think of for now. I'll post my labs when they become available to me.
Have a tremendous week!
Good Health to All!
ScottW
This week, I successfully hit 100 Kg's all three treatment days, and I have changed my dry weight to a flat 100 Kg's. From when I first started, I have now dropped my dry weight from 104.5 Kg's. That's a total of 9.90 pounds of useless water weight.
Dialysis Weights:
22 Mar 13
Starting Weight: 105.0 Kg
Ending Weight: 100.5 Kg
Water Removed: 4.50 Kg
25 Mar 14
Starting Weight: 106.4 Kg
Ending Weight: 101.6 Kg
Water Removed: 4.80 Kg
27 Mar 14
Starting Weight: 105.5 Kg
Ending Weight: 100.9 Kg
Water Removed: 4.60 Kg
29 Mar 14
Starting Weight: 104.5 Kg
Ending Weight: 100.2 Kg
Water Removed: 4.30 Kg
01 Apr 14
Starting Weight: 104.8 Kg
Ending Weight: 100.6 Kg
Water Removed: 4.20 Kg
03 Apr 14
Starting Weight: 104.5 Kg
Ending Weight: 100.3 Kg
Water Removed: 4.20 Kg
05 Apr 14
Starting Weight: 103.3 Kg
Ending Weight: 100.1 Kg
Water Removed: 3.20 Kg
[Actually,] That's a total of five consecutive treatments that I have hit the 100 Kg mark. It's been a long, slow and somewhat painful journey, but it is well worth the effort. I have [generally] less cramping, NO...that NO fluid in my lungs, and my average Blood Pressure has accordingly dropped as well. Yesterday I entered dialysis at 146/92, and left at veritably perfect 120/68. That BP is exactly what my Nephrologist wants me to have!
I don't have the monthly labs yet; they haven't been drawn so far this month. More than likely, they will be pulled on Tuesday, with the results available later next week. When I have the numbers, I'll get them posted.
Still no diarrhea. It's now going on three months since the last incidence. Overall, my bowels are fairly regular in timing and form. Anything irregular is not a good thing, and should always be reported to your physicians.
My appetite and tastes have been changing the last few weeks. I don't know if it is because of the lack of kidneys, or some other reason. All I know is that foods are bland, and tasteless, my hunger is increasing, and I don't get any satisfaction from a good meal. It's frustrating to not have anything to eat that sounds good. My wife really is a Saint when it comes to helping me figure out what to eat after dialysis. Most days, I have no clue, and she gently guides me along until I make a decision. Spouses, if you find yourself in this position, your husband or wife really doesn't know what they want to eat! Please give an abundance of patience and understanding to whomever you are caring for, and know that they are just as frustrated, and at as much as a loss as you are at not knowing what they want to eat.
My energy has increased probably 10%. I am moving quicker--not that most people would notice with as slow as I move most of the time--I am making decisions quicker than anytime in the last two years, and my brain seems to be a bit sharper these days. While the steps aren't huge, I am making positive forward progress. A little every day will go a long way towards recovery in the long run.
That's all I can think of for now. I'll post my labs when they become available to me.
Have a tremendous week!
Good Health to All!
ScottW
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