Dialysis Weights:
06 Aug 16
Starting Weight: 101.6 Kg
Ending Weight: 66.7 Kg
Water Removed: 1.90 Kg
Start BP: 155/87 End BP: 126/108
09 Aug 16
Starting Weight: 102.1 Kg
Ending Weight: 100.0 Kg
Water Removed: 2.10 Kg
Start BP: 159/101 End BP: 161/109
11 Aug 16
Starting Weight: 102.3 Kg
Ending Weight: 100.0 Kg
Water Removed: 2.30 Kg
Start BP: 138/87 End BP: 156/104
13 Aug 16
Starting Weight: 102.9 Kg
Ending Weight: 100.2 Kg
Water Removed: 2.70 Kg
Start BP: 141/81 End BP: 124/103
16 Aug 16
Starting Weight: 102.9 Kg
Ending Weight: 100.3 Kg
Water Removed: 2.60 Kg
Start BP: 153/91 End BP: 100/71
18 Aug 16
Starting Weight: 102.1 Kg
Ending Weight: 100.1 Kg
Water Removed: 2.00 Kg
Start BP: 146/89 End BP: 114/83
20 Aug 16
Starting Weight: 103.1 Kg
Ending Weight: 99.8 Kg
Water Removed: 3.30 Kg
Start BP: 155/97 End BP: 113/86
While my weights have all been in line, the BP readings have been all over the place. The entry readings are OK, but the exit readings range from great to bad; especially looking at the Diastolic reading (the second of the two). Some are great, while others are not good at all. I don't really know what I can do to rectify this, aside from everything I am doing right now.
Just another ten days until I call my Transplant Coordinator and place myself back on the Active List. It's been odd not having to be on guard 24/7 with my phone this month. Relaxing, but odd. Soon enough I will have my phone with me 24/7 once again. Hopefully, I get my call soon. I am no longer hoping for any time frame. I've been disappointed too many times since the new UNOS rules went into effect. From now on my attitude about receiving my call is, 'I'll believe it when I get it.' This leads to much less anticipation and disappointment.
In the meantime, I will continue keeping my mind in a good place, challenging myself mentally with games of logic, strategy and timing (this keeps my brain sharp), and do everything I must in order to be as healthy as possible going into the transplant. Doing both will help to ensure as successful a post-transplant outcome as can be expected--aside from organ rejection from extraneous reasons completely out of my control.
I continue to sleep more than usual. Over the past week or more, my average sleep around each dialysis treatment (Tx) has ranged from 18-22 hours. That is up significantly from 13-17 hours. It is what it is, and I work hard to prevent frustration from creeping up on me due to the sheer number of hours I am now sleeping. After all, excessive sleep is why I received my disability judgement, so why be upset that I am doing a great job at earning my monthly payment?
Along with the sleeping increase, I am also napping more each day; anywhere from 15-45 minutes several times each day. Like I said, it is what it is. No frustrations.
My appetite continues to be poor. Even my once per day decent meal has become 'once per day so-so' meal. Finding palpable foods is becoming more difficult as even the slightest off-putting factor is increasingly making foods unappetizing. Oh, for the transplant and pretty much every food looking great once again! I'll get there...
I don't remember if I mentioned, but due to the latest leakage in my arm during dialysis [from the graft], during an appointment in which I was going to have the chest tube removed [at the end of the month], I am now going to have the graft mapped to assure it is working properly, and discuss with my vascular surgeon how to prevent leaks from the graft, and whether or not eliminating heparin from the dialysis Tx will lead to the graft clotting off due to my high blood clotting factor. I will definitely let you know on that. In the meantime, I will continue to use the chest catheter exclusively...again...
That's about all I have for today. I will wait until that appointment with my vascular surgeon until I make my next entry. That will be on the 31st of the month, so be looking for a new entry after that.
Until then...
Good Health to All!
ScottW
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