Wednesday, January 21, 2015

21 January 2015

Time for an update...

Dialysis Weights:

06 Jan 15
Starting Weight:  99.2 Kg
Ending Weight:  95.9 Kg
Water Removed:  3.40 Kg

08 Jan 15
Starting Weight:  97.8 Kg
Ending Weight:  95.5 Kg
Water Removed:  2.30 Kg

10 Jan 15
Starting Weight:  97.7 Kg
Ending Weight:  95.8 Kg
Water Removed:  1.90 Kg

13 Jan 15
Starting Weight:  99.0 Kg
Ending Weight:  95.7 Kg
Water Removed:  3.30 Kg

15 Jan 15
Starting Weight:  97.9 Kg
Ending Weight:  95.8 Kg
Water Removed:  2.10 Kg

17 Jan 15
Starting Weight:  97.5 Kg
Ending Weight:  95.9 Kg
Water Removed:  1.60 Kg

20 Jan 15
Starting Weight:  99.6 Kg
Ending Weight:  95.6 Kg
Water Removed:  4.10 Kg

Once more, consistency is the word of the day. For anyone wondering how this consistency happens, the answer is both simple, and [fairly] easy...Self-Discipline.
Don't get me wrong...adhering to the renal diet and fluid intake is really tough. Every day I personally struggle with extreme thirst. But, a long time ago I chose to do what I had to in order to get through this in the best possible shape. That means, sticking to the renal diet(--well...OK, a little cheating is involved every so often!), and consciously limiting my fluid intake to approximately 34-36 fluid ounces per day. It's not easy getting used to restricting foods and liquids; but, as long as you keep the proper mindset, the task becomes easier to bear.

My labs this month look great! Here they are:

(January 2015 Labs)

*Albumin (16 Dec): 4.30 g/dL     (-0.30 from 18 Nov)
  (A measure of Protein in the blood)     NR (Normal Range) 4.0 g/dL or Higher

*Hemoglobin (06 Jan): 11.20 G/dL    (+0.20 G/dL from 02 Dec)
  (A Measure of Anemia)

*Ca Corrected (06 Jan): 9.20 mg/dL     (-0.10 mg/dL from 02 Dec)
  (A measure of Heart and Bone health)     NR 8.40 to 10.20 mg/dL

*Phosphorous (06 Jan:  5.00 mg/dL    (+0.10 mg/dL from 02 Dec)
  (High Phosphorous affects the health of your Heart and Bones)     NR 3.0 to 5.5 mg/dL

*PTH Intact (16 Dec):  174 pg/mL     (-78 pg/mL from 18 Nov)
  (A measure of Vitamin D absorption and bone and tissue health)     NR 150 to 600 pg/mL

*K+ (13 Jan):  5.0 mEq/L    (-1.00 from 02 Dec)
  (Proper potassium levels keep your nerves and muscles working well)     NR 3.5 to 5.5 mEq/L

*spKdt/V Dialysis (06 Jan):  1.69     (-0.04 from 02 Dec)

  (A measure of the effectiveness of dialysis and blood filtering.)     NR 1.20 or Higher 
Even the two reds I have are drops that are well within acceptable limits. In spite of Christmas and New Years (traditionally a very bad month for dialysis patients), my labs stayed right where they needed to be; and in the case of Potassium (K+), even dropped significantly! Yay!!  :o)

The URI I was combating in my last entry has pretty much resolved itself. As is usual with me, I continue hacking phlegm out of my lungs, and will do so for a few more weeks.

As you can see on my weights, I am dropping my dry weight again. For now, the goal is 95.8 Kg; but, my next target is 95.5 Kg. I've been having cramping in both feet; and until that resolves, I won't be trying to drop any further. At today's post_D weight, my cramping was significant, so it may be a couple more weeks before I deliberately try for 95.5 Kg.

Even though my weight has decreased significantly, I continue to have issues with water hiding under my diaphragm, leading to Respiritory Compromise. This doesn't always happen, but when it does, it nails me hard. Yesterday was a prime example. I started feeling the restricted breathing on Sunday evening, but decided to sleep in the bed anyway. Bad move on my part. When I awoke on Monday, the restriction has increased exponentially, and breathing was difficult in general. I only slept a few fitful hours on Monday night, struggling all night to breath comfortably.
No, I did NOT go to the ER because they would simply put me on O2, then watch me until it was time for me to go to dialysis; which I did at my usual Tuesday time (0600a!).
I used Oxygen (O2, at 4.00 L/Min) to help force better air into my body. Within half an hour I was comfortable and breathing normal.
This restrictive breathing is not an all the time thing. I went weeks between significant episodes. For me, the water sometimes just likes to collect under or near my diaphragm, instead of going to my legs, arms, back, etc. Plus, I haven't been having much diarrhea lately,which in and of itself is a very good thing, which would also aid in reducing my total water volume.

My sleep has been pretty good the last few weeks. I've been getting about seven hours on S/M/W/F, and about five hours on the nights just prior to dialysis. add in a few short naps each day, and my total sleep is pretty decent at about 8-9 hours each day. Plus, the quality of my sleep is better overall. Then, add in better control of my dreams, and I am seeing better and longer single nights' sleep than I've had in several years. I'll definitely take that improvement!


And that is about all I have for today. Everything else is either on auto pilot, or in a holding pattern as I await "the Call."

Good Health to All!

ScottW



 

My Latest Self Port...

Monday, January 5, 2015

05 January 2015

Well, Christmas and New Years are finally over and it's now time to get back to keeping you updated on my progress.

Let's start with dialysis weights:

09 Dec 14
Starting Weight:  99.7 Kg
Ending Weight:  96.3 Kg
Water Removed:  3.40 Kg

11 Dec 14
Starting Weight:  98.6 Kg
Ending Weight:  96.5 Kg
Water Removed:  2.10 Kg

13 Dec 14
Starting Weight:  99.7 Kg
Ending Weight:  96.3 Kg
Water Removed:  3.40 Kg

16 Dec 14
Starting Weight:  100.0 Kg
Ending Weight:  96.5 Kg
Water Removed:  3.50 Kg

18 Dec 14
Starting Weight:  98.9 Kg
Ending Weight:  96.0 Kg
Water Removed:  2.90 Kg

20 Dec 14
Starting Weight:  98.7 Kg
Ending Weight:  95.9 Kg
Water Removed:  2.80 Kg

22 Dec 14
Starting Weight:  97.9 Kg
Ending Weight:  96.0 Kg
Water Removed:  1.90 Kg

24 Dec 14
Starting Weight:  99.0 Kg
Ending Weight:  95.5 Kg
Water Removed:  3.50 Kg

27 Dec 14
Starting Weight:  99.3 Kg
Ending Weight:  95.9 Kg
Water Removed:  3.40 Kg

30 Dec 14
Starting Weight:  97.3 Kg
Ending Weight:  95.8 Kg
Water Removed:  1.50 Kg

01 Jan 15
Starting Weight:  96.6 Kg
Ending Weight:  96.1 Kg
Water Removed:  0.50 Kg

03 Jan 15
Starting Weight:  97.4 Kg
Ending Weight:  95.8 Kg
Water Removed:  1.60 Kg
 
Aside from a few treatments, my weight has remained steady. Around Christmas I came down with an Upper Respiritory Infection (URI). For nearly a week I ate very little, drank very little and felt pretty miserable. I coughed up thick, viscous mucous for nearly five days. Zofran every three and a half hours was a must, accompanied by frequent Tums chasers. The most obvious sign of my being sick was my voice. Whenever I get a cold or a URI, my voice bottoms out to a deep, gravely noise that no one recognizes as me. It's awesome! :o)

News on my L Arm:
Remember the issues I was having with my L arm? Well, it turns out the fistula on that arm is completely closing off. There was a small flap still allowing fluid through, which was building fluid pressure above the fistula causing the painful edema and discoloration of the lower arm. The vascular doc told me the edema and pain would subside anywhere between two weeks and two months.
So, as of this writing, the swelling in the arm is gone; as are the pain and discoloration. There is zero neural compromise, so the fistula is now completely closed off. The only residual effect is the hardening of the fistula. That will likely never change.

I've been doing research on the new rules for cadaveric donations of kidneys (and other organ donations, too). Because of my age, general health, time on dialysis, antigen score and anticipated life expectancy, I should be at or near the top of the list. While the original timeframe for my receiving a kidney is nearing its end, the new rules will affect that, and it could be anywhere between now and another year before I get a transplant. However, when I do, it should be a very healthy organ that will give me years of viability--possibly the only transplant I will ever need; assuming I will take care of the kidney.
So...the waiting continues...
The info on the new UNOS rules is fairly scattered amongst numerous sites. Start at UNOS, then branch out from there. The more you read about the changes, the better your understanding of the plethora of issues involved.

Although the latest monthly labs won't be taken until tomorrow, I already know that both my K+ (Potassium) and Phosphorous numbers are in excellent shape. Both are down near the 4.6 mark the last time both were checked. The new labs should be available by Friday, so I'll get those posted later this week.

That's about all I have for now. I won't wait almost a month again before posting my next blog.

Good Health to All!

ScottW