Monday, March 27, 2017

27 March 2017

It isn't the best of days for me to be writing an update; but if I don't get to it now, another week or more will slip by before I get to writing again.

Today is...challenging, to say the least. After an all too brief respite of two consecutive weekends, my body has once again poured all incoming fluids underneath my diaphragm, making breathing difficult, and sleep highly elusive in any position. Naturally, this leaves me exhausted, frustrated, uncomfortable, etc. The good news is that I have dialysis tomorrow morning. YAY!!

And on top of everything else I'm dealing with this weekend, my body has decided that I don't need to have a BM for the last three days. So, I get to have a rumbly, tight and very uncomfortable lower abdomen, too. Talk about having a party!  ;o)

Dialysis Weights:

14 Mar 17
Starting Weight:  99.2 Kg
Ending Weight:  97.1 Kg
Water Removed:  2.10 Kg
Start BP:  197/115     End BP:  164/101

16 Mar 17
Starting Weight:  99.0 Kg
Ending Weight:  96.9 Kg
Water Removed:  2.10 Kg
Start BP:  188/104     End BP:  178/89

18 Mar 17
Starting Weight:  99.8 Kg
Ending Weight:  96.7 Kg
Water Removed:  3.10 Kg
Start BP:  181/108     End BP:  177/96

21 Mar 17
Starting Weight:  99.3 Kg
Ending Weight:  97.1 kg
Water Removed:  2.10 Kg
Start BP:  202/119     End BP:  170/97

23 Mar 17
Starting Weight:  100.6 Kg
Ending Weight:  96.5 Kg
Water Removed:  4.10 Kg
Start BP:  186/99     End BP:  178/100

25 Mar 17
Starting Weight:  98.7 Kg
Ending Weight:  96.6 Kg
Water Removed:  2.10 Kg
Start BP:195/106     End BP:  189/97

My dry weight is finally coming down to target! Along with that is the obligatory cramping; though it isn't as bad as it was just a couple of weeks ago. My body is getting used to the lower weight, so I might further decrease my dry weight in the next few Tx's.
Hand in hand with the lowering dry weight is my lowering BP. While the ending systolic remains a bit high, the end diastolic is much improved. So far, my BP has not compromised my artificial graft. I still have a ways to go before that happens, so I really won't be concerned about that. Keep and eye on, Yes. Worry, No.

March 2017 Labs

*Albumin (21 Mar): 4.30 g/dL     (+0.10 from 21 Feb)
  (A measure of Protein in the blood)     NR (Normal Range) 4.0 g/dL or Higher

*Hemoglobin (21 Mar): 9.70 G/dL    (-0.70 g/dL from 21 Feb)
  (A Measure of Anemia)

*Ca Corrected (07 Mar): 9.80 mg/dL     (-0.50mg/dL from 07 Feb)
  (A measure of Heart and Bone health)     NR 8.40 to 10.20 mg/dL

*Phosphorous (07 Mar):  4.60 mg/dL    (+0.50 mg/dL from 07 Feb)
  (High Phosphorous affects the health of your Heart and Bones)     NR 3.0 to 5.5 mg/dL

*PTH Intact (21 Mar):  487 pg/mL     (-7
pg/mL 21 Feb)
  (A measure of Vitamin D absorption and bone and tissue health)     NR 150 to 600 pg/mL

*K+ (21 Mar):  5.2 mEq/L    (-0.20 mEq/L from 28 Feb)
  (Proper potassium levels keep your nerves and muscles working well)     NR 3.5 to 5.5 mEq/L

*spKdt/V Dialysis (07 Mar):  1.81     (+0.12 from 07 Feb)

  (A measure of the effectiveness of dialysis and blood filtering.)     NR 1.20 or Higher  

My labs this month are fantastic! ALL GREEN's! And what do all green numbers mean? (Repeat with me...) "I am doing everything that is required so that I am as healthy as possible going into transplant!"  Despite the fact I don't know when my call will come in, I must be prepared at all times for it to happen! After all, you don't want to get your call, arrive ready and raring to go, only to be turned away because your potassium is too high, or your phosphorous is out of whack, etc. THAT would be a huge bummer!!!

While we're on the subject of the transplant call, I have NOT received any calls over the past month. Yet, with the calls I got in February, I know that I am now in the Top 5 for my blood type. Even though I have no idea when my call will arrive, just knowing I am so close is a tremendous comfort. No longer is it "if" I get my call, it is now a matter of "how much longer?"

My appetite remains the same, as does my sleep (overall), headaches, energy level (again, overall), etc. About the only thing that's different is my determination to be ready for transplant. I am sooooooo close, and at this point, I refuse to sabotage myself whenever my call does come in. Doing anything otherwise would be downright foolish of me, or anyone else!

That's all I have for now.
Stay tuned...my call could be here at any time now...

Good Health to All!

ScottW




Monday, March 13, 2017

13 March 2017

I looked on my blog this morning and discovered that my last entry was over a month ago...

...please accept my apologies for the delay. I have no excuse other than time just passed so quickly. (And NO, I have NOT gotten my call for transplant...unfortunately.)

So, let's get caught up...

Dialysis Weights:

07 Feb 17
Starting Weight:  99.2 Kg
Ending Weight:  97.4 Kg
Water Removed:  1.80 Kg
Start BP:  208/121     End BP:  160/93

09 Feb 17

Starting Weight:  100.0 Kg
Ending Weight:  97.3 Kg
Water Removed:  2.70 Kg
Start BP:  186/97     End BP:  157/97


11Feb 17

Starting Weight:  99.9 Kg
Ending Weight:  97.4 Kg
Water Removed:  2.50 Kg
Start BP:  208/111     End BP:  163/99

14 Feb 17
Starting Weight:  99.1 Kg
Ending Weight:  97.4 Kg
Water Removed:  1.70 Kg
Start BP:  179/115     End BP:  154/92

16 Feb 17
Starting Weight:  100.0 Kg
Ending Weight:  97.3 Kg
Water Removed:  2.70 Kg
Start BP:  196/114     End BP:  163/100

18 Feb 17
Starting Weight:  99.2 Kg
Ending Weight:  97.3 Kg
Water Removed:  1.90 Kg
Start BP:  196/115     End BP:  156/97

21 Feb 17
Starting Weight:  100.5 Kg
Ending Weight:  97.5 Kg
Water Removed:  3.00 Kg
Start BP:  208/118     End BP:  163/101

23 Feb 17
Starting Weight:  99.6 Kg
Ending Weight:  97.1 Kg
Water Removed:  2.50 Kg
Start BP:  198/110     End BP:  164/103

25 Feb 17
Starting Weight:  99.5 Kg
Ending Weight:  97.1 Kg
Water Removed:  2.40 Kg
Start BP:  186/110     End BP:  157/96

28 Feb 17
Starting Weight:  100.2 Kg
Ending Weight:  97.2 Kg
Water Removed:  3.00 Kg
Start BP:  210/118     End BP:  136/96

02 Mar 17
Starting Weight:  99.0 Kg
Ending Weight:  97.0 Kg
Water Removed:  2.00 Kg
Start BP:  182/112     End BP:  175/92

04 Mar 17
Starting Weight:  99.2 Kg
Ending Weight:  96.8 Kg
Water Removed:  2.40 Kg
Start BP:  194/111     End BP:  161/104

07 Mar 17
Starting Weight:  100.3 Kg
Ending Weight:  97.1 Kg
Water Removed:  3.20 Kg
Start BP:  183/107     End BP:  161/99

09 Mar 17
Starting Weight:  100.0 Kg
Ending Weight:  97.0 Kg
Water Removed:  3.00 Kg
Start BP:  195/118     End BP:  172/103

11 Mar 17
Starting Weight:  99.7 Kg
Ending Weight:  ???
Water Removed:  ???
Start BP:  199/121     End BP:  ???
*???= Electricity Outage at the dialysis clinic. My Tx ended over 45 minutes early. I was manually rinsed back, but could not get my post-weight, nor my final BP.

As of now, my dry weight target is 96.7 Kg. I have been trying to go down below 97.0 Kg for a few weeks, but my body has been reluctant to give all the fluids I am trying to remove. As a result, I have been consistently above my target water loss by 0.3-0.5 Kg just about every single day.

No matter that I am having difficulty hitting my dry weight, though. After every dialysis session I have been having terrible leg cramps post-Tx. I'm talking bolt up from a dead sleep into a standing position so you can get the cramping to stop, type cramping. Nasty,horrible cramps! Until these go away I will not try to go any lower than 96.7 Kg.

Along those lines, I spoke with my Nephrologist last Tuesday about my BP. He is starting to get concerned about the high level, but wants to try to avoid any BP meds at this point due to my impending transplant. As we are seeing definite progress with lowering my BP with my dropping dry weight, the plan is to continue working on my dry weight as the means of reducing my BP...for now. This could always change.

My body has continued to put most all of my water gain [between dialysis Tx's] underneath my diaphragm, and causing continued issues with breathing easily. While my days between Tx's have had some issues, it's my Mondays that have been a terrible struggle to get through. Trying to stand, sit or relax comfortably is a serious issue on Mondays, and sleeping is nearly impossible. As a result, I go into my Tuesday dialysis in serious sleep deficit, then end up sleeping 20-24 hours over a day and a half. This is repeating itself every Tuesday/Wednesday. At least I am getting the sleep I need, right?

As far as my appetite, it remains poor, at best. One decent meal per day is the norm, with a small breakfast or lunch besides. Plus, a little snacking may or may not happen during the day. Conversely, my energy remains low, and my ability to be active is minimized. I do as much as I can every day, though even that is becoming less and less.    I don't like this development, but, it is what it is. I cannot do what I cannot do. Fretting about this does absolutely no good; nor for anyone around me.

On things that are changing for the better--I know, these are few and far between at this point--as the season changes from Winter to Spring, I have discovered that I am not as cold as I have been over the last 7 years. I don't know when, how or why this has changed, and I am not griping about it. I am just grateful for this development! Don't get me wrong...I still get cold. Just not so damned cold that I have to be under blankets in a 74 degree room. And with the local weather getting warmer than normal, I am actually going to my early morning dialysis with just a windbreaker instead of a fleece or warmer jacket on. If this continues I will soon be wearing shorts every day...Aaahhhhh........!!!  :o)

Well, I think that's about all for today. At least, I'm getting so tired that I cannot think of anything else!
I continue to await my call. I anticipate that my placement is now easily in the Top 5 for my bloodtype. And that means that my call could come in at any time. So, my phone is charged and on full volume 24/7/365.

Until next time...

Good Health to All!

ScottW