FINALLY...
The date is set...
November 15th
will be the day I have the double Nephrectomy and get my hernia repaired.
I met with the surgeon this morning at the IMC (Intermountain Medical Center) Campus.
To start I did extensive paperwork (Hx, Rx's, etc), followed by the surgeon coming in and going into detail about the surgery itself, and answering questions.
I have to go in to the hospital a few days prior to the surgery to have labs drawn. The surgeons need to check K+ levels (potassium), antigen count, CBC, etc. The testing will be extensive. IF my K+ is too high, the surgery will be delayed as excessive K+ can cause major cardiac events during a surgery--a VERY bad thing! Being on dialysis, my K+ levels are good on a consistent basis, so this shouldn't hold up the surgery.
Another factor that might potentially delay the surgery is if the surgeons have a transplant come up that morning. If that's the case, we'll just reschedule. I certainly won't begrudge another patient getting a transplant!
As far as dialysis; I'll do my regularly scheduled Tx's on Tuesday (12th) and Thursday (14th), followed by the surgery on the 15th, then do an in-hospital dialysis on the 16th (possibly on the day of the surgery, depending on my K+). After that, I don't know. It will just depend on my daily labs. Once I get home, my dialysis Tx's will return to the same schedule (545a Tues/Thurs/Sat).
The surgery itself will present possible complications such as bleeding, infection, blood clots, stroke, etc. One of the things the surgeons will do to lessen possible infection will be to extensively irrigate the area around the kidneys once they have extracted the organs. All the icky, discolored fluid in the cysts can apparently be quite nasty on the body if it is not irrigated out.
There is always the possibility that the surgery could go from laproscopic to fully open, due to any unforeseen issues they encounter during the procedure. Let's hope that all goes well and this is not necessary!
When the kidneys are being extracted the surgical team will roll me on one side (say the R), puncture the cysts and kidney, take out the L kidney, clamping the artery, veins and ureter; then roll me onto the other side and do the same to the R kidney. Once all the irrigation is finished and on the way out, the surgeons will repair the hernia under my navel (belly button) just before closing up.
I will then be a guest of IMC for 3-7 days, depending on how I am doing.
So, there you have it! I've been waiting a long time for this day, and it is but two weeks away! It's really a weird place to be, mentally...getting excited to have two of your seven vital organs removed. But, after the last six months, I am way past ready to get them out! I was telling the surgeon about the sharp pains I had the other day--I talked about them in my last entry--and he just shook his head and said, "It's definitely time to get them out if you can feel the cysts popping!"
If you have any questions, please feel free to leave them in the comments. I will answer as soon as I am able.
Good Health to All!
ScottW
Wednesday, October 30, 2013
Monday, October 28, 2013
28 October 2013
Time to catch up!
As always, let's begin with the most recent Dialysis Weights...
19 Oct 13
Starting Weight: 106.7 Kg
Ending Weight: 103.9 Kg
Water Removed: 2.80 Kg
22 Oct 13
Starting Weight: 106.3 Kg
Ending Weight: 104.0 Kg
Water Removed: 2.30 Kg
24 Oct 13
Starting Weight: 106.0 Kg
Ending Weight: 104.0 Kg
Water Removed: 2.00 Kg
26 Oct 13
Starting Weight: 106.4 Kg
Ending Weight: 104.0 Kg
Water Removed: 2.40 Kg
Consistency is once again the name of the game! This is achieved, of course, through diligence in eating properly, drinking less fluids and the fact that I still product urine--a soon to be non-factor.
Anyhow, for any patient of chronic illness, the key is simply to follow the doctors instructions, follow Rx regimens, and take care of yourself as best you can. (I know I really hammer that point; but I hear so many patients go on about doing what they want, then wonder why they feel worse than they should, or go into dialysis too heavy, with too much blood sugar, etc. Just...STOP making excuses and do as you are instructed!
This last week I also had my yearly Davita Dialysis Evaluation. I was given complete labs (see below) and interviewed as to my current health, the benefits of dialysis (and drawbacks) and my level of patient care received. I gave the staff of my clinic glowing reviews, and expressed my sincere appreciation for everything they do for me!
Here are the labs:
All of my complete lab results appear to be in line with where I am at physically. There really aren't any surprises, one way or the other, from what I see.
The day I have long been waiting for is here on Wednesday. I see the surgeon to schedule my double Nephrectomy. I am hoping to be able to schedule the surgery for sometime on the week on 11 Nov. That would work best for my wife's schedule and the upcoming Thanksgiving holiday. Plus, it would mean I only have a couple more weeks to tolerate this awful back pain. I'm also going to ask for any pictures, video, etc. the surgeons might take. I want to see these things that are inside of me! I also am going to request a copy of the pathology report from the kidney exam. I'd love to post these things on here!
Of course, I will take notes and tell you all about the consult!
While we're on the subject of back pain...
The bilateral flank pain is worse than ever! I am no longer comfortable in any position, on any chair, bed, etc. I am now trying to sit with my back not touching anything, which also strains other muscles in my back. It's a no-win situation; but putting any pressure on my kidneys is just killing me!
Last night I had something interesting happen over my R kidney. I was sitting in my office chair when I suddenly felt six or seven sharp stabbing pains that all lingered a few minutes, then were gone. Considering the location and the type and quality of the pains, I think I may have popped some cysts on the R kidney. The overall pain isn't alleviated at all; but at least I probably got rid of a few of the nasty cysts.
The headache goes on...and on...and on... In about two weeks, it (the headache) will reach the four year mark of its continuous duration! I am still holding out hope that the nephrectomy will result in eliminating this damned headache. It's certainly about time for it to end!
Over the last couple of weeks I've noticed that the hernia under my navel (belly button) has become seemingly firm on a permanent basis. I understand that this is to be expected as the kidney disease progressed, so I'm not worried about it at all. But it is definitely interesting --to me--to see this result finally manifested. This extension above the hernia will disappear during the nephrectomy because the surgeons will repair it once the kidneys are out. It will also be interesting to see how much my belly goes down because of the hernia repair.
I was going to talk about a few other things; but my flanks are hurting so much that I decided to wrap this up so I can go and try to get comfortable.
Again, I'll write about the surgical consult on Wednesday evening, or so. Look to the next entry with news about the nephrectomy!
Until then...
Good Health to All!
ScottW
As always, let's begin with the most recent Dialysis Weights...
19 Oct 13
Starting Weight: 106.7 Kg
Ending Weight: 103.9 Kg
Water Removed: 2.80 Kg
22 Oct 13
Starting Weight: 106.3 Kg
Ending Weight: 104.0 Kg
Water Removed: 2.30 Kg
24 Oct 13
Starting Weight: 106.0 Kg
Ending Weight: 104.0 Kg
Water Removed: 2.00 Kg
26 Oct 13
Starting Weight: 106.4 Kg
Ending Weight: 104.0 Kg
Water Removed: 2.40 Kg
Consistency is once again the name of the game! This is achieved, of course, through diligence in eating properly, drinking less fluids and the fact that I still product urine--a soon to be non-factor.
Anyhow, for any patient of chronic illness, the key is simply to follow the doctors instructions, follow Rx regimens, and take care of yourself as best you can. (I know I really hammer that point; but I hear so many patients go on about doing what they want, then wonder why they feel worse than they should, or go into dialysis too heavy, with too much blood sugar, etc. Just...STOP making excuses and do as you are instructed!
This last week I also had my yearly Davita Dialysis Evaluation. I was given complete labs (see below) and interviewed as to my current health, the benefits of dialysis (and drawbacks) and my level of patient care received. I gave the staff of my clinic glowing reviews, and expressed my sincere appreciation for everything they do for me!
Here are the labs:
The day I have long been waiting for is here on Wednesday. I see the surgeon to schedule my double Nephrectomy. I am hoping to be able to schedule the surgery for sometime on the week on 11 Nov. That would work best for my wife's schedule and the upcoming Thanksgiving holiday. Plus, it would mean I only have a couple more weeks to tolerate this awful back pain. I'm also going to ask for any pictures, video, etc. the surgeons might take. I want to see these things that are inside of me! I also am going to request a copy of the pathology report from the kidney exam. I'd love to post these things on here!
Of course, I will take notes and tell you all about the consult!
While we're on the subject of back pain...
The bilateral flank pain is worse than ever! I am no longer comfortable in any position, on any chair, bed, etc. I am now trying to sit with my back not touching anything, which also strains other muscles in my back. It's a no-win situation; but putting any pressure on my kidneys is just killing me!
Last night I had something interesting happen over my R kidney. I was sitting in my office chair when I suddenly felt six or seven sharp stabbing pains that all lingered a few minutes, then were gone. Considering the location and the type and quality of the pains, I think I may have popped some cysts on the R kidney. The overall pain isn't alleviated at all; but at least I probably got rid of a few of the nasty cysts.
The headache goes on...and on...and on... In about two weeks, it (the headache) will reach the four year mark of its continuous duration! I am still holding out hope that the nephrectomy will result in eliminating this damned headache. It's certainly about time for it to end!
Over the last couple of weeks I've noticed that the hernia under my navel (belly button) has become seemingly firm on a permanent basis. I understand that this is to be expected as the kidney disease progressed, so I'm not worried about it at all. But it is definitely interesting --to me--to see this result finally manifested. This extension above the hernia will disappear during the nephrectomy because the surgeons will repair it once the kidneys are out. It will also be interesting to see how much my belly goes down because of the hernia repair.
I was going to talk about a few other things; but my flanks are hurting so much that I decided to wrap this up so I can go and try to get comfortable.
Again, I'll write about the surgical consult on Wednesday evening, or so. Look to the next entry with news about the nephrectomy!
Until then...
Good Health to All!
ScottW
Wednesday, October 23, 2013
Recap: Dental Follow-Up
I had my one month post-care dental appointment this afternoon, and to sum it up in as few words as possible, the extraction site looks great and is healing properly, the fillings have set properly and my gums--after the deep cleaning--appear pink, healthy and infection-free!
The dentist was glad to hear that I've been following his post-care instructions, and have been doing the daily oral care as prescribed.
That's about it.
Next up: A February visit for additional dental care--a part of the regular visits I will be doing for the rest of my life.
And, next doctor visit: One week from today, in fact; with the surgeon, ahead my Nephrectomy. Woo-Hoo! :o)
ScottW
The dentist was glad to hear that I've been following his post-care instructions, and have been doing the daily oral care as prescribed.
That's about it.
Next up: A February visit for additional dental care--a part of the regular visits I will be doing for the rest of my life.
And, next doctor visit: One week from today, in fact; with the surgeon, ahead my Nephrectomy. Woo-Hoo! :o)
ScottW
Friday, October 18, 2013
18 October 2013
Lots to talk about today, so I'll get going with my usual dialysis weights...
10 Oct 13
Starting Weight: 105.6 Kg
Ending Weight: 103.9 Kg
Water Removed: 1.70 Kg
12 Oct 13
Starting Weight: 106.0 Kg
Ending Weight: 104.1 kg
Water Removed: 1.90 Kg
15 Oct 13
Starting Weight: 107.1 Kg
Ending Weight: 104.1 Kg
Water Removed: 3.00 Kg
17 Oct 13
Starting Weight: 106.0 Kg
Ending Weight: 103.8 Kg
Water Removed: 2.20 Kg
Aside from last weekend, my weight stays consistent. I work hard every day to achieve this; but it's definitely worth the effort as big swings in weight (pre and post-D) tend to cause bad cramping after treatment. A great incentive to do well!
Speaking of cramping, I don't remember if I ever told you about my efforts to reduce cramping --besides weight control. I was talking with one of the dialysis clinic nurses (in August, I think) about reducing my cramping. Since my labs are great all of the time, he suggested I try drinking a cup or so of dill pickle juice before dialysis. I really can't do that--not with my stomach!
Instead, I decided to try eating a dill pickle spear just before treatment. The intent here is because I rarely consume salt/sodium, the dialysis might actually be causing a sodium deficit, thereby causing cramping that might not otherwise be present in other patients. (After all, your body DOES need a certain amount of sodium every day. Most times, there is plenty of sodium in veggies, meats, etc to meet your daily needs. Since I don't eat processed foods, my sodium intake is lower than most Americans. However, with sodium being filtered off, that needed volume dissipates leaving you in sodium deficit.)
Anyhow, after my first try at this, I had no cramping after dialysis...possibly a coincidence. I tried again the next treatment; same result. I now eat one half a dill pickle prior to every Tx, and I have yet to experience any cramping after dialysis. I will continue to do this for as long as I am on dialysis.
Now, this works for me; but it may not work for anyone else. Again, I am affected by the sodium deficit because I follow my dietary guidelines, and eat only freshly prepared meals, relying on the naturally existing sodium to meet my daily needs--I've been doing this for years, by the way. (I just prefer foods with no added salt! I have since I was a teenager. Try it yourself! Food tastes better!) If you are eating unhealthy levels of sodium, this approach is NOT for you! As I've stated before, listen to your body. It will always tell you what it needs to stay healthy!
My Latest Labs:
*Albumin (17 Sep): 4.70 g/dL (+0.10 g/dL from 20 Aug)
(A measure of Protein in the blood) NR (Normal Range) 4.0 g/dL or Higher
*Hemoglobin (15 Oct): 11.2 g/dL (+0.10 g/dL from 03 Sep)
(A Measure of Anemia)
*Ca Corrected (08 Oct): 9.70 mg/dL (+0.40 mg/dL from 03 Sep)
(A measure of Heart and Bone health) NR 8.40 to 10.20 mg/dL
*Phosphorous (08 Oct): 4.60 mg/dL (+ 0.1 mg/dL from 03 Sep)
(High Phosphorous affects the health of your Heart and Bones) NR 3.0 to 5.5 mg/dL
*PTH Intact (17 Sep): 161 pg/mL (-14 pg/mL from 20 Aug)
(A measure of Vitamin D absorption and bone and tissue health) NR 150 to 600 pg/mL
*K+ (17 Sep): 3.9 mEq/L (-0.30 mEq/L from 20 Aug)
(Proper potassium levels keep your nerves and muscles working well) NR 3.5 to 5.5 mEq/L
*spKdt/V Dialysis (08 Oct): 1.38 (-0.13 from 03 Sep)
(A measure of the effectiveness of dialysis and blood filtering.) NR 1.20 or Higher
Overall, my labs are still great! The drops or rises in levels are indicative of reducing Renal function. However, all of the results are still within the target ranges, in spite of the red numbers. Thank goodness I'll be getting my kidneys out soon!
While I'm on the subject of kidney removal, I had my latest visit with my Nephrologist yesterday. He said that I am doing exceptionally, and that I am, and I quote, "A terrific patient! (stated emphatically!) I wish all of my patients were as good as you are!" I will certainly take that kind of praise from any physician!
Anyhow, I asked my doc about life after the Bilateral Nephrectomy. I stated that, as always, I want to know what to expect ahead of time rather than worrying, wondering, etc. (My Nephrologist always appreciates this about me!) So, here's what he said:
-The likeliest surgical complication will be bleeding. Infection is always possible; but again, not likely.
-While a six week recovery (post-surgery) is given, the typical nephrectomy patient takes about three months to heal.
-I should expect my weight to increase post-surgery due to edemic increase (natural with any surgery). Additionally, with the method currently employed for kidney removal, most of the fluids inside the kidneys will be released into my body. Over time, the dialysis treatments will take all of that water weight out. Total decrease time for weight depletion should be about two months.
-Dialysis time post-surgery will increase! Even at the reduced function of my kidneys, they are providing benefit. Once out, that benefit is gone, and longer dialyzing time will be required. My doc anticipates an extra 30-60 minutes from my current dialyzing time of four hours. How my body responds will dictate any adjustments in time on dialysis.
-My regimen of meds may change post-surgery. I will be on the same meds initially, but my BP (blood pressure) may actually drop, thereby reducing the meds I am on. This one would be nice! Again, every patient is different, so what I need will simply be what ends up happening on this.
That's it. I even asked about increased diarrhea (No!), increased edema (possibly), dietary changes (none), etc. Every answer came back as either 'no,' or 'not likely.'
I expressed to my doctor that I hope that my headache will reduce (or be gone entirely!), and that I also hope that without the back pain and feeling ill all the time, that I will hopefully get started walking every day to increase my strength, help reduce my weight, etc. My doctor received that statement with enthusiasm and a smile!
So, things to look forward to!
As I previously stated, I have the surgical consult coming up at the end of the month.
I'll keep you updated with all the info a day or so afterwards.
As far as how I am doing, here's the latest...
My energy level from day to day is nearly gone. No matter how long my naps are, how long my sleep goes, I awaken as exhausted as when I went to sleep. There seems to be no relief from the exhaustion, at this point. The challenge shifts to my keeping my brain in a good place in spite of both feeling lousy and the extreme fatigue I feel 24/7. And it is definitely challenging, too!
My jaw continues to relax. There is now minimal pain when I chew, and I can open my mouth a little wider. I expect this slow healing to keep going until I have my normal R.O.M. (Range of Motion) in my jaw once again. I do have my one month dental follow-up this coming Wednesday. I'll tell you all bout the relevant info.
(It sure seems like I've got a lot of doctor appointments lately, and well...I do! And from here until I after my transplant, I'll have a LOT more, too! Woo-Hoo!)
My appetite seems to be improving. Although I still easily get appetite fatigue, at least I am eating more, when I eat. Still no breakfast--probably never will be; but my other two meals are better. I'll take any improvement here!
The headache is the same as always and is now approaching 48 months in duration. Now that the added TMD complications that resulted from all the dental work are subsiding, the headache is returning to its normal intensity and pattern. Another win, as far as I'm concerned!
My dreams continue to be in my control. It's now been a number of weeks since I had a bad dream. A shift in my thinking with the Nephrectomy coming up may be helping this, too. I am finally looking forward to an event, rather than just trying to get through from day to day. In either case, yet another win! :o)
I am getting excited about everything, now. My kidneys will be out soon; I'll be on the Active Transplant Recipient List soon; I now have hope in returning to a normal life... It's been a long haul...and more to go...but at least there is now Hope. A Very Good Thing!
Good Health to All!
ScottW
10 Oct 13
Starting Weight: 105.6 Kg
Ending Weight: 103.9 Kg
Water Removed: 1.70 Kg
12 Oct 13
Starting Weight: 106.0 Kg
Ending Weight: 104.1 kg
Water Removed: 1.90 Kg
15 Oct 13
Starting Weight: 107.1 Kg
Ending Weight: 104.1 Kg
Water Removed: 3.00 Kg
17 Oct 13
Starting Weight: 106.0 Kg
Ending Weight: 103.8 Kg
Water Removed: 2.20 Kg
Aside from last weekend, my weight stays consistent. I work hard every day to achieve this; but it's definitely worth the effort as big swings in weight (pre and post-D) tend to cause bad cramping after treatment. A great incentive to do well!
Speaking of cramping, I don't remember if I ever told you about my efforts to reduce cramping --besides weight control. I was talking with one of the dialysis clinic nurses (in August, I think) about reducing my cramping. Since my labs are great all of the time, he suggested I try drinking a cup or so of dill pickle juice before dialysis. I really can't do that--not with my stomach!
Instead, I decided to try eating a dill pickle spear just before treatment. The intent here is because I rarely consume salt/sodium, the dialysis might actually be causing a sodium deficit, thereby causing cramping that might not otherwise be present in other patients. (After all, your body DOES need a certain amount of sodium every day. Most times, there is plenty of sodium in veggies, meats, etc to meet your daily needs. Since I don't eat processed foods, my sodium intake is lower than most Americans. However, with sodium being filtered off, that needed volume dissipates leaving you in sodium deficit.)
Anyhow, after my first try at this, I had no cramping after dialysis...possibly a coincidence. I tried again the next treatment; same result. I now eat one half a dill pickle prior to every Tx, and I have yet to experience any cramping after dialysis. I will continue to do this for as long as I am on dialysis.
Now, this works for me; but it may not work for anyone else. Again, I am affected by the sodium deficit because I follow my dietary guidelines, and eat only freshly prepared meals, relying on the naturally existing sodium to meet my daily needs--I've been doing this for years, by the way. (I just prefer foods with no added salt! I have since I was a teenager. Try it yourself! Food tastes better!) If you are eating unhealthy levels of sodium, this approach is NOT for you! As I've stated before, listen to your body. It will always tell you what it needs to stay healthy!
My Latest Labs:
*Albumin (17 Sep): 4.70 g/dL (+0.10 g/dL from 20 Aug)
(A measure of Protein in the blood) NR (Normal Range) 4.0 g/dL or Higher
*Hemoglobin (15 Oct): 11.2 g/dL (+0.10 g/dL from 03 Sep)
(A Measure of Anemia)
*Ca Corrected (08 Oct): 9.70 mg/dL (+0.40 mg/dL from 03 Sep)
(A measure of Heart and Bone health) NR 8.40 to 10.20 mg/dL
*Phosphorous (08 Oct): 4.60 mg/dL (+ 0.1 mg/dL from 03 Sep)
(High Phosphorous affects the health of your Heart and Bones) NR 3.0 to 5.5 mg/dL
*PTH Intact (17 Sep): 161 pg/mL (-14 pg/mL from 20 Aug)
(A measure of Vitamin D absorption and bone and tissue health) NR 150 to 600 pg/mL
*K+ (17 Sep): 3.9 mEq/L (-0.30 mEq/L from 20 Aug)
(Proper potassium levels keep your nerves and muscles working well) NR 3.5 to 5.5 mEq/L
*spKdt/V Dialysis (08 Oct): 1.38 (-0.13 from 03 Sep)
(A measure of the effectiveness of dialysis and blood filtering.) NR 1.20 or Higher
Overall, my labs are still great! The drops or rises in levels are indicative of reducing Renal function. However, all of the results are still within the target ranges, in spite of the red numbers. Thank goodness I'll be getting my kidneys out soon!
While I'm on the subject of kidney removal, I had my latest visit with my Nephrologist yesterday. He said that I am doing exceptionally, and that I am, and I quote, "A terrific patient! (stated emphatically!) I wish all of my patients were as good as you are!" I will certainly take that kind of praise from any physician!
Anyhow, I asked my doc about life after the Bilateral Nephrectomy. I stated that, as always, I want to know what to expect ahead of time rather than worrying, wondering, etc. (My Nephrologist always appreciates this about me!) So, here's what he said:
-The likeliest surgical complication will be bleeding. Infection is always possible; but again, not likely.
-While a six week recovery (post-surgery) is given, the typical nephrectomy patient takes about three months to heal.
-I should expect my weight to increase post-surgery due to edemic increase (natural with any surgery). Additionally, with the method currently employed for kidney removal, most of the fluids inside the kidneys will be released into my body. Over time, the dialysis treatments will take all of that water weight out. Total decrease time for weight depletion should be about two months.
-Dialysis time post-surgery will increase! Even at the reduced function of my kidneys, they are providing benefit. Once out, that benefit is gone, and longer dialyzing time will be required. My doc anticipates an extra 30-60 minutes from my current dialyzing time of four hours. How my body responds will dictate any adjustments in time on dialysis.
-My regimen of meds may change post-surgery. I will be on the same meds initially, but my BP (blood pressure) may actually drop, thereby reducing the meds I am on. This one would be nice! Again, every patient is different, so what I need will simply be what ends up happening on this.
That's it. I even asked about increased diarrhea (No!), increased edema (possibly), dietary changes (none), etc. Every answer came back as either 'no,' or 'not likely.'
I expressed to my doctor that I hope that my headache will reduce (or be gone entirely!), and that I also hope that without the back pain and feeling ill all the time, that I will hopefully get started walking every day to increase my strength, help reduce my weight, etc. My doctor received that statement with enthusiasm and a smile!
So, things to look forward to!
As I previously stated, I have the surgical consult coming up at the end of the month.
I'll keep you updated with all the info a day or so afterwards.
As far as how I am doing, here's the latest...
My energy level from day to day is nearly gone. No matter how long my naps are, how long my sleep goes, I awaken as exhausted as when I went to sleep. There seems to be no relief from the exhaustion, at this point. The challenge shifts to my keeping my brain in a good place in spite of both feeling lousy and the extreme fatigue I feel 24/7. And it is definitely challenging, too!
My jaw continues to relax. There is now minimal pain when I chew, and I can open my mouth a little wider. I expect this slow healing to keep going until I have my normal R.O.M. (Range of Motion) in my jaw once again. I do have my one month dental follow-up this coming Wednesday. I'll tell you all bout the relevant info.
(It sure seems like I've got a lot of doctor appointments lately, and well...I do! And from here until I after my transplant, I'll have a LOT more, too! Woo-Hoo!)
My appetite seems to be improving. Although I still easily get appetite fatigue, at least I am eating more, when I eat. Still no breakfast--probably never will be; but my other two meals are better. I'll take any improvement here!
The headache is the same as always and is now approaching 48 months in duration. Now that the added TMD complications that resulted from all the dental work are subsiding, the headache is returning to its normal intensity and pattern. Another win, as far as I'm concerned!
My dreams continue to be in my control. It's now been a number of weeks since I had a bad dream. A shift in my thinking with the Nephrectomy coming up may be helping this, too. I am finally looking forward to an event, rather than just trying to get through from day to day. In either case, yet another win! :o)
I am getting excited about everything, now. My kidneys will be out soon; I'll be on the Active Transplant Recipient List soon; I now have hope in returning to a normal life... It's been a long haul...and more to go...but at least there is now Hope. A Very Good Thing!
Good Health to All!
ScottW
Monday, October 14, 2013
A Bit of News
Just thought I'd pass along that I now have an appointment with a surgeon for a consult on the double Nephrectomy scheduled for 30 Oct at 11a.
I am meeting with one of the Transplant surgeons for the procedure so that I have consistency between the nephrectomy and the transplant. I recommend that other pre-transplant patients, who need a nephrectomy, also do this. It simply assures a standard of care that you could need, and will also assure proper surgical technique for the kidney removal. You certainly don't have to have transplant surgeons do the nephrectomy; but I've had three physicians, as well as my Transplant Coordinator, all tell me that this was a great plan. I have to follow that kind of advice!
Anyhow, I will tell you all about the appointment, and relay all relevant information.
Good Health to All!
ScottW
I am meeting with one of the Transplant surgeons for the procedure so that I have consistency between the nephrectomy and the transplant. I recommend that other pre-transplant patients, who need a nephrectomy, also do this. It simply assures a standard of care that you could need, and will also assure proper surgical technique for the kidney removal. You certainly don't have to have transplant surgeons do the nephrectomy; but I've had three physicians, as well as my Transplant Coordinator, all tell me that this was a great plan. I have to follow that kind of advice!
Anyhow, I will tell you all about the appointment, and relay all relevant information.
Good Health to All!
ScottW
Wednesday, October 9, 2013
09 October 2013
I had a long pot-dialysis nap today, so even though the time is late, I am wide awake and decided to go ahead and get the next entry written up. After all, there really isn't much to do at 1:30 in the morning!
As always, dialysis weights:
01 Oct 13
Starting Weight: 106.6 Kg
Ending Weight: 104.0 Kg
Water Removed: 2.60 Kg
03 Oct 13
Starting Weight: 106.0 Kg
Ending Weight: 104.0 Kg
Water Removed: 2.00 Kg
05 Oct 13
Starting Weight: 105.8 Kg
Ending Weight: 104.1 Kg
Water Removed: 1.70 Kg
08 Oct 13
Starting Weight: 106.0 Kg
Ending Weight: 103.8 Kg
Water Removed: 2.20 Kg
Once again, great consistency in my weights both pre and post-D. That's exactly what I am looking for! (Yay! Another small success!)
I finally had my monthly labs drawn yesterday. I should have the results by the weekend. There should be no surprises in the results as I continue to follow the Rx dosing regimen, the advice of the clinic Nutritionist, and the advice of my Nephrologist. And so far, this approach has yielded only positive lab results. So, if I am still following all the advice, how can my labs be anything but good? Like I've said before, being your healthiest, even with severe medical problems, is entirely within your ability to attain! Simply follow the instructions of your health professionals. It really IS that easy!
The pain in my jaw from the aggravated TMD continues. I did discover that I wasn't able to move my jaw in certain ways--that no one really should be able to do anyway--that I normally can, so I pressed on my L ball joint and after several attempts, finally got my jaw to move into its proper position. Ever since, the R joint hurts less, I can chew with less pain, and I can finally open my jaw more. There is still a ways to go as I still have significant pain on the R, but at least there is vast improvement. Hopefully, within another week or two, everything will be back to normal.
My appetite hasn't improved in the past week. Still taking in less food overall, but I'm really trying to drink less fluids in spite of being thirsty most of the time. Maybe I should just drink an extra Smart Water to eliminate the thirst. After all, aside from water deficiency, thirst indicates a drop of electrolytes in the body; and Smart Water is full of electrolytes. I'll give it a try this afternoon.
The bilateral flank pain goes on without a break, now. The 24/7 pain is now consistent in its overall quality, location and character. I expected this to happen at this stage of the game. Further, I expect the pain to only increase from now on, too. I no longer feel any "pops" happen (when a cyst ruptures), feel no instantaneous relief at any time, nor have days when I feel as if there's no flank pain at all. It is definitely time...
Anyhow, that's all I've got. My brain is tired, I'm done sitting up...at least, in an office chair, and in spite of a nearly seven hour "nap," I am getting sleepy.
I will keep you apprised of my lab results when I get them.
Have a great week!
Good Health to All!
ScottW
As always, dialysis weights:
01 Oct 13
Starting Weight: 106.6 Kg
Ending Weight: 104.0 Kg
Water Removed: 2.60 Kg
03 Oct 13
Starting Weight: 106.0 Kg
Ending Weight: 104.0 Kg
Water Removed: 2.00 Kg
05 Oct 13
Starting Weight: 105.8 Kg
Ending Weight: 104.1 Kg
Water Removed: 1.70 Kg
08 Oct 13
Starting Weight: 106.0 Kg
Ending Weight: 103.8 Kg
Water Removed: 2.20 Kg
Once again, great consistency in my weights both pre and post-D. That's exactly what I am looking for! (Yay! Another small success!)
I finally had my monthly labs drawn yesterday. I should have the results by the weekend. There should be no surprises in the results as I continue to follow the Rx dosing regimen, the advice of the clinic Nutritionist, and the advice of my Nephrologist. And so far, this approach has yielded only positive lab results. So, if I am still following all the advice, how can my labs be anything but good? Like I've said before, being your healthiest, even with severe medical problems, is entirely within your ability to attain! Simply follow the instructions of your health professionals. It really IS that easy!
The pain in my jaw from the aggravated TMD continues. I did discover that I wasn't able to move my jaw in certain ways--that no one really should be able to do anyway--that I normally can, so I pressed on my L ball joint and after several attempts, finally got my jaw to move into its proper position. Ever since, the R joint hurts less, I can chew with less pain, and I can finally open my jaw more. There is still a ways to go as I still have significant pain on the R, but at least there is vast improvement. Hopefully, within another week or two, everything will be back to normal.
My appetite hasn't improved in the past week. Still taking in less food overall, but I'm really trying to drink less fluids in spite of being thirsty most of the time. Maybe I should just drink an extra Smart Water to eliminate the thirst. After all, aside from water deficiency, thirst indicates a drop of electrolytes in the body; and Smart Water is full of electrolytes. I'll give it a try this afternoon.
The bilateral flank pain goes on without a break, now. The 24/7 pain is now consistent in its overall quality, location and character. I expected this to happen at this stage of the game. Further, I expect the pain to only increase from now on, too. I no longer feel any "pops" happen (when a cyst ruptures), feel no instantaneous relief at any time, nor have days when I feel as if there's no flank pain at all. It is definitely time...
Anyhow, that's all I've got. My brain is tired, I'm done sitting up...at least, in an office chair, and in spite of a nearly seven hour "nap," I am getting sleepy.
I will keep you apprised of my lab results when I get them.
Have a great week!
Good Health to All!
ScottW
Thursday, October 3, 2013
03 October 2013
(I had started this post while at dialysis earlier this morning; but using an Android-based tablet can be mighty frustrating, so I ran into a problem with drafting the entry, I decided to just finish it later.)
I am a bit behind in writing up my latest entry, and as I am sitting here on dialysis with nothing better to do I thought, 'Might as well!'
As for my recent dental work, my fillings are still quite sensitive to cold, so I limit how cold liquids are. The extraction site is looking great. All discoloration is gone, and the sensitivity in the area is now minimal. I am still having a LOT of pain in my R ball joint of my jaw. The TMD was excessively irritated by all the work--as anticipated--and I am having a lot of pain whenever I open my mouth to chew or even put food in my mouth.
I have found that when eating, if I apply moderate pressure to my L ball joint, I can open my mouth wider and have less pain as I chew.
Plus, I have been using my NTI Devices every night, and during all naps to get the muscles and inflammation to relax. After a few days of the NTI Devices, things have begun to settle down; but there is still significant pain and discomfort. I am seeing my Chiropractor tomorrow, and will ask if he can adjust my jaw a bit; which will also help.
The week I was to use the Chlorhexidine rinse has passed, and just this morning I began to use Listerine mouthwash. I have never used this product before, and it sure does carry a wallop! It will take some getting used to; but it really is for my best oral health.
My dreams lately have been totally under my control. I haven't had any bad dreams in a number of weeks. This is definitely a good thing as it means that my mind is doing well,
I am in a good place mentally, and my future is looking better! In my nightly prayers I continue to ask for that control of my subconscious, though. No point in going backwards in this area! I'll use any tool at my disposal to avoid the misery that accompanies night after night of bad dreams. There's too much at stake to backtrack now!
Well, that's all for today. I haven't had my monthly labs at dialysis yet, so I should be reporting on those results soon.
Enjoy this Fall week, and remember to smile frequently, laugh heartily and always keep a positive thought in mind for those times when adversity besets you!
Good Health to All!
ScottW
I am a bit behind in writing up my latest entry, and as I am sitting here on dialysis with nothing better to do I thought, 'Might as well!'
So, please forgive any spelling deficiencies as my tablet is vastly different from my PC, and catching serious errors is difficult, at best.
As always, let's start with the dialysis weights:
24 Sep 13
Starting Weight: 106.0 Kg
Ending Weight: 103.9 Kg
Water Removed: 2.10 Kg
26 Sep 13
Starting Weight: 105.8 Kg
Ending Weight: 104.0 Kg
Water Removed: 1.80 Kg
28 Sep 13
Starting Weight: 106.1 Kg
Ending Weight: 104.1 Kg
Water Removed: 2.00 Kg
-------------------------------------------------------------------------------------------------------------
(It's now later...)
Looks like things with my weight have settled down again. I'll never complain about that!
My appetite is down again, though. I'm either not very hungry, or foods are just looking unappetizing. Aside from dialysis days, I have skipped breakfast (like normal), and skipped lunch this entire past week. And my dinners have been smaller, too. I know this isn't a good thing; but when food in completely unappealing, it's really tough to want to eat.
As far as my liquid intake, I have been extremely thirsty lately. I am trying to control my liquids, but I know I've not been as successful as I should; my liquids increasing from about 50 oz's per day to about 75 oz's. I have to be better about this because when my kidney's come out, I'll be severely restricted as to my liquids. Better I get used to it now rather than suddenly being forced to have little to drink.
My energy level remains on its downward trend. I am still struggling to get up and moving after a full night of sleep; my chores are taking longer to complete; and I am too tired to do much on my photos, and have completely dropped any attempts at creative writing.
I hate feeling this tired; but I also know that this is temporary, which helps me to avoid frustration and any feelings of worthlessness.
-------------------------------------------------------------------------------------------------------------
(It's now later...)
Looks like things with my weight have settled down again. I'll never complain about that!
My appetite is down again, though. I'm either not very hungry, or foods are just looking unappetizing. Aside from dialysis days, I have skipped breakfast (like normal), and skipped lunch this entire past week. And my dinners have been smaller, too. I know this isn't a good thing; but when food in completely unappealing, it's really tough to want to eat.
As far as my liquid intake, I have been extremely thirsty lately. I am trying to control my liquids, but I know I've not been as successful as I should; my liquids increasing from about 50 oz's per day to about 75 oz's. I have to be better about this because when my kidney's come out, I'll be severely restricted as to my liquids. Better I get used to it now rather than suddenly being forced to have little to drink.
My energy level remains on its downward trend. I am still struggling to get up and moving after a full night of sleep; my chores are taking longer to complete; and I am too tired to do much on my photos, and have completely dropped any attempts at creative writing.
I hate feeling this tired; but I also know that this is temporary, which helps me to avoid frustration and any feelings of worthlessness.
As for my recent dental work, my fillings are still quite sensitive to cold, so I limit how cold liquids are. The extraction site is looking great. All discoloration is gone, and the sensitivity in the area is now minimal. I am still having a LOT of pain in my R ball joint of my jaw. The TMD was excessively irritated by all the work--as anticipated--and I am having a lot of pain whenever I open my mouth to chew or even put food in my mouth.
I have found that when eating, if I apply moderate pressure to my L ball joint, I can open my mouth wider and have less pain as I chew.
Plus, I have been using my NTI Devices every night, and during all naps to get the muscles and inflammation to relax. After a few days of the NTI Devices, things have begun to settle down; but there is still significant pain and discomfort. I am seeing my Chiropractor tomorrow, and will ask if he can adjust my jaw a bit; which will also help.
The week I was to use the Chlorhexidine rinse has passed, and just this morning I began to use Listerine mouthwash. I have never used this product before, and it sure does carry a wallop! It will take some getting used to; but it really is for my best oral health.
My dreams lately have been totally under my control. I haven't had any bad dreams in a number of weeks. This is definitely a good thing as it means that my mind is doing well,
I am in a good place mentally, and my future is looking better! In my nightly prayers I continue to ask for that control of my subconscious, though. No point in going backwards in this area! I'll use any tool at my disposal to avoid the misery that accompanies night after night of bad dreams. There's too much at stake to backtrack now!
Well, that's all for today. I haven't had my monthly labs at dialysis yet, so I should be reporting on those results soon.
Enjoy this Fall week, and remember to smile frequently, laugh heartily and always keep a positive thought in mind for those times when adversity besets you!
Good Health to All!
ScottW
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