Can you believe I am getting a blog done only three days after my last one?
Amazing, I know!
Well Sunday turned out to be a decent day. The headache actually wasn't too bad for most of the day, averaging a manageable 8. Towards the evening that changed, but at least I got somewhat of a break most of the day. The flank pain was bad all day; I couldn't change that at all even by shifting positions. By late Sunday evening the edema in my hands and feet had increased significantly. Rebound color was +3, but the skin rebound was over +20 minutes. The legs and feet were worse than the hands (as usual), but I did have edemic increase in the lower arms and fingers. I did NOT do a rebound test on my hands.
Then, I ended up sleeping a full nine and a half hours on Sunday night. However, on waking I was terribly groggy, and it took about two hours after waking to feel like I was awake. Monday ended up being OK, though I had zero energy, and got little done throughout the day. The edema retreated only slightly, and the headache spiked to a 9.5, but nothing out of what is now the ordinary.
Last night I slept fairly once again, getting about eight good hours of sleep out of about nine that I was in bed. One thing about my sleep that I don't believe I have ever elaborated on is my sleeping habits. Under normal circumstances I would never go to bed until I was ready to sleep. Once my head hit the pillow I would literally be asleep between 10-30 seconds. Any longer and I felt like I had insomnia. A normal person's 20 minute average to fall asleep was just so far out of my typical experience that I would get out of bed after ten minutes.
Then on waking I usually awaken quickly, and get out of bed almost immediately. Partly because of my lower back, and partly because that is what I have done my entire life. I always felt like I had too much to do that I could not justify laying around in bed.
Anyhow, even with as inconsistent as my sleep has been, I am still waking and getting right out of bed, and I rarely lay in bed for long trying to sleep. So, when I say that I got eight hours of good sleep in nine, that usually means I had about an hour of poor quality sleep; and NOT because I had trouble getting to sleep.
Today has been an OK day. I saw my chiropractor for a sore R shoulder that has been bothering me for a couple of months. We ended up doing light massage on the shoulder and the brachial plexus, as well as doing acupuncture on the area with attached micro current. As of this evening my shoulder feels about 40% better, and I have improved ROM (Range of Motion) in my R arm. I will do a second visit next Tuesday to see if we can finish treating the shoulder.
Other than that, my day has seen nausea on eating, my headache spike from 8-9.5, and the now usual bilateral flank pain.
I still have no obvious blood in my urine, have had zero kidney stones, nor is my skin developing any ammonia crystallization. My breath remains terrible. I decided to continue using mouthwash to combat this, and it is fairly effective. I have started using it right before bed, and this has decreased the nastiness in my mouth every morning by about 15%. Not a huge benefit [in the morning], but trust me...at least that flavor in my mouth has been chipped away if even a little bit.
That is about all I've got. Only three days is much easier to talk about rather than my usual six. Does that mean I'll get this done again in three more days? Doubtful, seeing as to how time just flies for me. But, I will try nonetheless.
Until next time,
Good Health to All!
ScottW
Tuesday, April 24, 2012
Saturday, April 21, 2012
21 April 2012
In the six days since my last entry, things have been like a downhill roller coaster.
My last blog entry talked about the terrible day I had last Saturday. Well, Sunday I felt better, though not great. While the major S/S's had decreased to "normal," I still felt under the weather all day. I did feel up to going on a short drive to hopefully get a few photos. The drive was good--it was great getting out of the house!--but the drive itself was noteworthy because I had only a small issue with nausea or vertigo. I think this might be because of the new car I just got. It is a mid-size SUV that I can easily get in and out of, and it is higher off the ground. I think that the taller vehicle has gotten me above a lot of the visual stimulus that triggered the vertigo and subsequent intense nausea. A few more rides in the car should help bear that assertion out...or not.
Monday I felt a little off again. It was nothing major; I just felt ill all day, and had increased body aches, and continued diarrhea.
Tuesday was another really bad day. I awoke after about ten hours of sleep to a horrible headache, body aches from head to toe, a very intense ill feeling, a lot of bilateral flank pain, and nausea, too. As the day progressed I was again subjected to three bouts of diarrhea, and an increasingly intense headache. I sat around all day, dozed off for a half hour numerous times, and just felt totally wiped out. I ate nothing until about 945p, and was able to keep the food down.
Wednesday was again better, though not great. The headache was finally under control at a solid 9, which was actually nice. I still had two more episodes of diarrhea, continued flank pain and continued body aches. I was at least able to get around a little bit to get some housework done.
Thursday was better still. All of the symptomology was down except the headache, flank pain and (again) the diarrhea. My energy was up, and I actually ate a fairly good amount of food. Granted the food made me nauseated; but at least I ate.
Yesterday (Friday) was an OK day. I felt a little better, my headache was down to a very welcome 7, and I again ate a good amount of food--around 2.5 cups in total for the day.
On the negative side, the flank pain was again elevated and very constant, I still had diarrhea, and I ended the day with a huge increase of edema in my lower legs. I hadn't seen edema that bad in a month or more. I did a single rebound test at my ankle and the numbers were Color: +3 Skin: +15.
Today I awoke with my headache raging. You know it is bad when the first thing I do after waking is to take a T3--which is exactly what I had to do today. Overall today I am not feeling overly bad; but I am not feeling at all very good, either. Very blah, too.
On the subject of my headaches, I had the "wonderful" experience of getting an MSG induced headache last night. I am intolerant of Monosodium Glutamate (MSG)--an artificial "flavor enhancer"--, and am always careful to avoid eating any because it causes me to have sudden, unbelievably intense, pounding, all encompassing headaches that start about an hour after ingesting food with MSG. These headaches go well beyond the headaches I am having every day. They feel quite different, too.
Anyway, I ate some food that I knew to be safe. About an hour later, I felt my headache suddenly shoot to about a 14 (on a scale of 1-10). Two T3's didn't even put a dent in the headache. I just had to endure it. The only cure for this MSG induced headache is time...time to filter out of my body. Normally that would be about 1.5 hours after onset. With my kidneys in such poor shape that time frame increased to over six hours. NOT fun!!
I looked at the ingredients of the food I ate and sure enough, MSG was now the fourth ingredient down the list; meaning that there is a good amount of it in the food. I have to give my son the rest of the product that I have because that is now off limits for me. Once the headache had calmed, I got online and wrote the company about the issue. That may not make any difference, but at least they know that one of their products is now out of my purchasing ability.
In other areas, my urine continues to be odoriferous and very foamy (no obvious blood though!); my sleep is poor in quality, consistency and restorative ability, my eyesight continues its good to bad movement (dependent on how I am feeling), my breath is well, terrible, and my energy level is very poor.
So, that's a fairly good summation of my week. I am hoping that this next week is far, far better. However, a bad week will not get me down. My mind is still in a good place, I am as productive every day as I can be, my personal projects are moving forward, and I have much to be thankful for, and lots still to accomplish. So, on we go...
Good Health to All!
ScottW
My last blog entry talked about the terrible day I had last Saturday. Well, Sunday I felt better, though not great. While the major S/S's had decreased to "normal," I still felt under the weather all day. I did feel up to going on a short drive to hopefully get a few photos. The drive was good--it was great getting out of the house!--but the drive itself was noteworthy because I had only a small issue with nausea or vertigo. I think this might be because of the new car I just got. It is a mid-size SUV that I can easily get in and out of, and it is higher off the ground. I think that the taller vehicle has gotten me above a lot of the visual stimulus that triggered the vertigo and subsequent intense nausea. A few more rides in the car should help bear that assertion out...or not.
Monday I felt a little off again. It was nothing major; I just felt ill all day, and had increased body aches, and continued diarrhea.
Tuesday was another really bad day. I awoke after about ten hours of sleep to a horrible headache, body aches from head to toe, a very intense ill feeling, a lot of bilateral flank pain, and nausea, too. As the day progressed I was again subjected to three bouts of diarrhea, and an increasingly intense headache. I sat around all day, dozed off for a half hour numerous times, and just felt totally wiped out. I ate nothing until about 945p, and was able to keep the food down.
Wednesday was again better, though not great. The headache was finally under control at a solid 9, which was actually nice. I still had two more episodes of diarrhea, continued flank pain and continued body aches. I was at least able to get around a little bit to get some housework done.
Thursday was better still. All of the symptomology was down except the headache, flank pain and (again) the diarrhea. My energy was up, and I actually ate a fairly good amount of food. Granted the food made me nauseated; but at least I ate.
Yesterday (Friday) was an OK day. I felt a little better, my headache was down to a very welcome 7, and I again ate a good amount of food--around 2.5 cups in total for the day.
On the negative side, the flank pain was again elevated and very constant, I still had diarrhea, and I ended the day with a huge increase of edema in my lower legs. I hadn't seen edema that bad in a month or more. I did a single rebound test at my ankle and the numbers were Color: +3 Skin: +15.
Today I awoke with my headache raging. You know it is bad when the first thing I do after waking is to take a T3--which is exactly what I had to do today. Overall today I am not feeling overly bad; but I am not feeling at all very good, either. Very blah, too.
On the subject of my headaches, I had the "wonderful" experience of getting an MSG induced headache last night. I am intolerant of Monosodium Glutamate (MSG)--an artificial "flavor enhancer"--, and am always careful to avoid eating any because it causes me to have sudden, unbelievably intense, pounding, all encompassing headaches that start about an hour after ingesting food with MSG. These headaches go well beyond the headaches I am having every day. They feel quite different, too.
Anyway, I ate some food that I knew to be safe. About an hour later, I felt my headache suddenly shoot to about a 14 (on a scale of 1-10). Two T3's didn't even put a dent in the headache. I just had to endure it. The only cure for this MSG induced headache is time...time to filter out of my body. Normally that would be about 1.5 hours after onset. With my kidneys in such poor shape that time frame increased to over six hours. NOT fun!!
I looked at the ingredients of the food I ate and sure enough, MSG was now the fourth ingredient down the list; meaning that there is a good amount of it in the food. I have to give my son the rest of the product that I have because that is now off limits for me. Once the headache had calmed, I got online and wrote the company about the issue. That may not make any difference, but at least they know that one of their products is now out of my purchasing ability.
In other areas, my urine continues to be odoriferous and very foamy (no obvious blood though!); my sleep is poor in quality, consistency and restorative ability, my eyesight continues its good to bad movement (dependent on how I am feeling), my breath is well, terrible, and my energy level is very poor.
So, that's a fairly good summation of my week. I am hoping that this next week is far, far better. However, a bad week will not get me down. My mind is still in a good place, I am as productive every day as I can be, my personal projects are moving forward, and I have much to be thankful for, and lots still to accomplish. So, on we go...
Good Health to All!
ScottW
Sunday, April 15, 2012
15 April 2012
Wow...Yesterday was a doozy!
I slept poorly all night and awoke even more exhausted than when I had gone to sleep. Plus, the ill feeling was the worst it has ever been. On top of that, I had body aches from head to toe, my headache was completely out of control at a solid 10, and I had fairly minor nausea. (What a way to wake up!)
As the day progressed only one of these S/S's alleviated, and I spent the day in my recliner, under a blanket, and sleeping off and on for most of the afternoon. I ate a little in the morning hoping that I could at least reduce the nausea, which it did end up doing. Otherwise, I was just miserable all day until about 8p when things began returning to normal and I began to feel better.
By 10p I was actually hungry and ate a late meal. By the time I got to sleep again, I was still feeling ill, and my headache was still raging on; but the other major S/S's had reduced to their normal levels.
I slept better last night, but still not great. On waking today the headache is better (at a nice 7) and the ill feeling is back down to its normal level.
I don't have any clue as to why yesterday was so terrible. I am happy that it is over, and looking forward to having a much better day!
Good Health to All!
ScottW
I slept poorly all night and awoke even more exhausted than when I had gone to sleep. Plus, the ill feeling was the worst it has ever been. On top of that, I had body aches from head to toe, my headache was completely out of control at a solid 10, and I had fairly minor nausea. (What a way to wake up!)
As the day progressed only one of these S/S's alleviated, and I spent the day in my recliner, under a blanket, and sleeping off and on for most of the afternoon. I ate a little in the morning hoping that I could at least reduce the nausea, which it did end up doing. Otherwise, I was just miserable all day until about 8p when things began returning to normal and I began to feel better.
By 10p I was actually hungry and ate a late meal. By the time I got to sleep again, I was still feeling ill, and my headache was still raging on; but the other major S/S's had reduced to their normal levels.
I slept better last night, but still not great. On waking today the headache is better (at a nice 7) and the ill feeling is back down to its normal level.
I don't have any clue as to why yesterday was so terrible. I am happy that it is over, and looking forward to having a much better day!
Good Health to All!
ScottW
Friday, April 13, 2012
13 April 2012
Well, five days have passed, it's time to do an entry, and I am feeling particularly yucky this morning. I really don't like writing my blog when I'm feeling especially lousy because my optimism is down, my verbiage is limited and it's just hard to think of anything good. Nevertheless, if I allow many more days to pass--which will happen seemingly in the blink of an eye--then this entry becomes really tough to write because so much time has passed. So...
Let's get on with it.
Starting with the good:
-My appetite has been up this week. I estimate my total daily intake at 1.5-2 cups/day. I still don't crave any food in particular; I am just able to eat more than my usual. Nor is food tasting as it normally would. As to why I am eating more, I have no idea. I'm just glad I can eat a little more right now. Food is always a good thing! ;o)
-The vertigo continues to be minimal. I haven't woken to any spinning in several weeks now; nor have I experienced the spinning when doing anything--waking or sleeping. I will definitely take that!
-The edema in my legs and hands has been less this whole week. Again, I have absolutely no idea as to why, but you'll find no complaints from me.
-The cramping in my lower kegs has decreased significantly. I still get them every day; I just don't get the muscle freezing, painfully severe cramps that I had been experiencing.
The not so good:
-I continue to have twice daily episodes of diarrhea. It is still controlled each day with Imodium.
-The ill feeling has been making a strong resurgence. I have done nothing [that I am aware of] to precipitate the increase. With everything else going on, I am having a tough week just because this is stronger than it has been in a week or so.
-My energy, in spite of my increased food intake, has been zilch. What energy I do have is used quickly every day. The other day I was doing grocery shopping and decided to walk instead of using a cart. Well, about five minutes in, I began feeling a swift energy drain, just like I've described before. Within about a minute I was thoroughly exhausted, I had to sit, and my flank pain had increased to very painful. My wife went and got a cart for me so we could continue shopping. It was not a fun experience.
-Sleep has been an issue all week. I haven't had a good night of sleep for over a week. I don't know why that is. My dreams have been controllable, my bed is extremely comfortable. I am just restless every night, and unable to get uninterrupted sleep. I can't figure out why the change from what had been great sleep for a while before this.
-The headache has had a few days of being a bit better, and a few days of being really bad. On the days it has improved [to about a 7], I have enjoyed the little break. My T3 usage reflects this, too as I actually went three extra days over what I would normally use in two weeks. Small victories!
The unchanged either way:
-My urinary characteristics have stayed the same. The color is still lighter than it had been, the clarity remains better, the foaminess is still high, and there is no obvious blood, nor any kidney stones.
-I am still losing my balance when I walk, turn, etc. In the house I lean on the walls, grab counters and anything else so I don't fall. When outside, my cane saves me from numerous ground-level falls.
-The flank pain continues without a break. It is still flaring up with walking, or when I am in certain positions either laying, sitting or standing. Any bending over is always resulting in greater flank pain.
And that is all I can remember today.
Let's all hope for a great week ahead!
Good Health to All!
ScottW
Let's get on with it.
Starting with the good:
-My appetite has been up this week. I estimate my total daily intake at 1.5-2 cups/day. I still don't crave any food in particular; I am just able to eat more than my usual. Nor is food tasting as it normally would. As to why I am eating more, I have no idea. I'm just glad I can eat a little more right now. Food is always a good thing! ;o)
-The vertigo continues to be minimal. I haven't woken to any spinning in several weeks now; nor have I experienced the spinning when doing anything--waking or sleeping. I will definitely take that!
-The edema in my legs and hands has been less this whole week. Again, I have absolutely no idea as to why, but you'll find no complaints from me.
-The cramping in my lower kegs has decreased significantly. I still get them every day; I just don't get the muscle freezing, painfully severe cramps that I had been experiencing.
The not so good:
-I continue to have twice daily episodes of diarrhea. It is still controlled each day with Imodium.
-The ill feeling has been making a strong resurgence. I have done nothing [that I am aware of] to precipitate the increase. With everything else going on, I am having a tough week just because this is stronger than it has been in a week or so.
-My energy, in spite of my increased food intake, has been zilch. What energy I do have is used quickly every day. The other day I was doing grocery shopping and decided to walk instead of using a cart. Well, about five minutes in, I began feeling a swift energy drain, just like I've described before. Within about a minute I was thoroughly exhausted, I had to sit, and my flank pain had increased to very painful. My wife went and got a cart for me so we could continue shopping. It was not a fun experience.
-Sleep has been an issue all week. I haven't had a good night of sleep for over a week. I don't know why that is. My dreams have been controllable, my bed is extremely comfortable. I am just restless every night, and unable to get uninterrupted sleep. I can't figure out why the change from what had been great sleep for a while before this.
-The headache has had a few days of being a bit better, and a few days of being really bad. On the days it has improved [to about a 7], I have enjoyed the little break. My T3 usage reflects this, too as I actually went three extra days over what I would normally use in two weeks. Small victories!
The unchanged either way:
-My urinary characteristics have stayed the same. The color is still lighter than it had been, the clarity remains better, the foaminess is still high, and there is no obvious blood, nor any kidney stones.
-I am still losing my balance when I walk, turn, etc. In the house I lean on the walls, grab counters and anything else so I don't fall. When outside, my cane saves me from numerous ground-level falls.
-The flank pain continues without a break. It is still flaring up with walking, or when I am in certain positions either laying, sitting or standing. Any bending over is always resulting in greater flank pain.
And that is all I can remember today.
Let's all hope for a great week ahead!
Good Health to All!
ScottW
Monday, April 9, 2012
08 April 2012
Happy Easter, Everyone!
I will start off today's entry by answering a question that was posed to me by a friend who was asking me about what I write in my blog. She wanted to know if I exaggerate anything, or otherwise make things sound worse than they actually are. The answer is a simple "No." My intent behind writing this blog is two-fold--
1) I am able to get things out of my brain and put firm distance between me and possible depression [because of what I am going through]. If I just internalize everything, I am likely to spiral into depression. Writing my thoughts allows me the avenue to express myself and to actually admit when things are tough. So far, my approach has been very successful.
2) I wanted to keep an accurate account of this experience in the hope that maybe...just maybe...someone out 'there' (with this, or any other such disease) might somehow benefit from my experience and take hope that their journey is not hopeless, nor is it unendurable. Plus, they might see that some things I write about they themselves may be experiencing, thus eliminating some of the fear that one can certainly feel in the middle of all of this.
Like I stated on my very first blog, I am not looking to be some hero in all of this for others to see and admire. Instead, I just want to convey fact, feelings, perceptions, etc that may be beneficial to others who might be fighting this disease. Exaggerations and all such efforts would be counterproductive to the entire reason I committed to, and undertook, this endeavor in the midst of feeling lousy when often, typing my entries is the very last thing I want to be doing.
Anyhow, let's get to the update...
Let's start with the Edema. Remember how I was stating that the peripheral edema always decreases right before my nephrology appointments? Well, sure enough, the day after the appointment, I began to see significant edemic increase in both lower legs, and a little in my hands. I swear it is a mental thing that is subconsciously triggered because of an impending doctor visit, then releases once the appointment has passed. It's kind of humorous; but, what can you do? One of these days, my doctor will actually see the severe edema in my legs. :o)
My headache is unchanged, and remains unremittent. I have woken with the headache every day since my last entry, and have gone to sleep with it every night. My NTI devices (for my TMD) are completely ineffective in reducing the headache at all. Plus, I have been trying to concentrate on body positioning, muscle tension, etc that might also contribute to possible TMD complications.
Now, a rather unpleasant one...diarrhea. This has been worse over the past four days. I don't know of anything I may have done to trigger an increase in incidents; nevertheless, I have had at least twice daily episodes this week. Imodium (in OTC prescribed doses) has alleviated it each day after two doses.
The bilateral flank pain continues. I actually bought a new office chair in hopes of being more comfortable whenever I am working at my computer. The chair is endorsed by the American Chiropractic Association (ACA). So far, I am a bit more comfortable. Other than my new chair helping a bit, I am definitely in pain when sitting, standing or laying. Plus, if I am in one position too long I have a positional pain increase that is only alleviated by adjusting my position. (Redundantly written, I know. Poor English these days seems to be my norm because of how exhausted I am.)
And speaking of exhaustion, let's just say it is going, and going, and going... After I have a transplant I think I'm going to have so much energy that I'll drive everyone around me nuts because I'll be wanting to go, Go, GO! It will be a good dilemma!
As is now usual, my eyesight is better or worse depending on how I am feeling. I have an opthamology exam scheduled in May--I think. I will be sure to let you know how that comes out.
My urine has been exceptionally odoriferous this week. The color has been better overall; but the odor has definitely been stronger, as has the foaminess. No kidney stones, though!
I forgot what else I wanted to say; so, I'll be going.
Good Health to All!
ScottW
I will start off today's entry by answering a question that was posed to me by a friend who was asking me about what I write in my blog. She wanted to know if I exaggerate anything, or otherwise make things sound worse than they actually are. The answer is a simple "No." My intent behind writing this blog is two-fold--
1) I am able to get things out of my brain and put firm distance between me and possible depression [because of what I am going through]. If I just internalize everything, I am likely to spiral into depression. Writing my thoughts allows me the avenue to express myself and to actually admit when things are tough. So far, my approach has been very successful.
2) I wanted to keep an accurate account of this experience in the hope that maybe...just maybe...someone out 'there' (with this, or any other such disease) might somehow benefit from my experience and take hope that their journey is not hopeless, nor is it unendurable. Plus, they might see that some things I write about they themselves may be experiencing, thus eliminating some of the fear that one can certainly feel in the middle of all of this.
Like I stated on my very first blog, I am not looking to be some hero in all of this for others to see and admire. Instead, I just want to convey fact, feelings, perceptions, etc that may be beneficial to others who might be fighting this disease. Exaggerations and all such efforts would be counterproductive to the entire reason I committed to, and undertook, this endeavor in the midst of feeling lousy when often, typing my entries is the very last thing I want to be doing.
Anyhow, let's get to the update...
Let's start with the Edema. Remember how I was stating that the peripheral edema always decreases right before my nephrology appointments? Well, sure enough, the day after the appointment, I began to see significant edemic increase in both lower legs, and a little in my hands. I swear it is a mental thing that is subconsciously triggered because of an impending doctor visit, then releases once the appointment has passed. It's kind of humorous; but, what can you do? One of these days, my doctor will actually see the severe edema in my legs. :o)
My headache is unchanged, and remains unremittent. I have woken with the headache every day since my last entry, and have gone to sleep with it every night. My NTI devices (for my TMD) are completely ineffective in reducing the headache at all. Plus, I have been trying to concentrate on body positioning, muscle tension, etc that might also contribute to possible TMD complications.
Now, a rather unpleasant one...diarrhea. This has been worse over the past four days. I don't know of anything I may have done to trigger an increase in incidents; nevertheless, I have had at least twice daily episodes this week. Imodium (in OTC prescribed doses) has alleviated it each day after two doses.
The bilateral flank pain continues. I actually bought a new office chair in hopes of being more comfortable whenever I am working at my computer. The chair is endorsed by the American Chiropractic Association (ACA). So far, I am a bit more comfortable. Other than my new chair helping a bit, I am definitely in pain when sitting, standing or laying. Plus, if I am in one position too long I have a positional pain increase that is only alleviated by adjusting my position. (Redundantly written, I know. Poor English these days seems to be my norm because of how exhausted I am.)
And speaking of exhaustion, let's just say it is going, and going, and going... After I have a transplant I think I'm going to have so much energy that I'll drive everyone around me nuts because I'll be wanting to go, Go, GO! It will be a good dilemma!
As is now usual, my eyesight is better or worse depending on how I am feeling. I have an opthamology exam scheduled in May--I think. I will be sure to let you know how that comes out.
My urine has been exceptionally odoriferous this week. The color has been better overall; but the odor has definitely been stronger, as has the foaminess. No kidney stones, though!
I forgot what else I wanted to say; so, I'll be going.
Good Health to All!
ScottW
Wednesday, April 4, 2012
04 April 2012
Alright folks, here's the latest...
Over the last two months, I had a drop in kidney function of 1.1%--down to 17.6%. This is positive movement. I've been hovering at 18+ for a year now, so this is good news.
My PTH (Parathyroid Hormone) level has returned to normal due to my taking the Zemplar three times per week. I am in decreased danger of developing hypercalcemia, therefore keeping the rest of my body fairly healthy.
My weight has increased to 243 (actual is 238 when accounting for the 5 lbs of titanium on my spine).
I don't have any idea how I actually gained weight given that I am not eating much.
My Hematacrit was up slightly to 33.8, as was the Serum Creatinine level to 39. All my other labs looked good, too. (I don't have exact numbers as I forgot to get a printout this time).
So, everything still appears to be all about my kidneys and the PCKD. Still no other organ involvement, or associated conditions--which is definitely good! As always, I will be on the lookout for signs and symptoms of renal insufficiency/failure. My next appointment is again in two months.
If you have any questions, please feel free to ask. If I don't know the answer, I will research it and then get back to you. On we go...
Good Health to All!
ScottW
Over the last two months, I had a drop in kidney function of 1.1%--down to 17.6%. This is positive movement. I've been hovering at 18+ for a year now, so this is good news.
My PTH (Parathyroid Hormone) level has returned to normal due to my taking the Zemplar three times per week. I am in decreased danger of developing hypercalcemia, therefore keeping the rest of my body fairly healthy.
My weight has increased to 243 (actual is 238 when accounting for the 5 lbs of titanium on my spine).
I don't have any idea how I actually gained weight given that I am not eating much.
My Hematacrit was up slightly to 33.8, as was the Serum Creatinine level to 39. All my other labs looked good, too. (I don't have exact numbers as I forgot to get a printout this time).
So, everything still appears to be all about my kidneys and the PCKD. Still no other organ involvement, or associated conditions--which is definitely good! As always, I will be on the lookout for signs and symptoms of renal insufficiency/failure. My next appointment is again in two months.
If you have any questions, please feel free to ask. If I don't know the answer, I will research it and then get back to you. On we go...
Good Health to All!
ScottW
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